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@mnewland99

Hello @suelannon
My first question after reading your post would be is your husband going to a pancreatic center of excellence? If you list your city and state, other members will be able to recommend medical centers and sometimes even drs you might want to get a 2nd opinion from. If husband is too weak to attend in person, a video call might be a possibility.
I had distal with spleen removed in 2022 and had a drain which I’m going to go out on a limb and say that a drain from abdominal area seems pretty standard procedure after surgery. I had a pancreatic duct leak after surgery which led to a GI bleed since those are acidic (digestive) juices. I was bleeding quite a bit into my drainage bag so I got a stent put in after not eating for 3-4 weeks (I did have a TPN nutrient bag). Not giving your body any foods to digest helps to stop the leak until a stent can be put in. After 6 weeks I had an ultrasound ERCP done to assess leaking and I was all good, so the stent was removed. If the leaking hadn’t stopped then a metal stent would have replaced that initial plastic stent. I also got pneumonia after my surgery since I wasn’t able to walk around much after my surgery; not fun. I also got pancreatitis and then Covid (all this with 1.5 months after my surgery). I did lose 50 pounds from time I got started getting my symptoms since I had extreme nausea and some of that weight was lost after surgery and while on the no food diet before stent insertion. I gained almost all weight back now! Did any drs run a CA19-9 blood test otherwise known as a “tumor marker?

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Replies to "Hello @suelannon My first question after reading your post would be is your husband going to..."

Thanks for your response. We started out at University of Penn in Phila. After we were told that they didn't think this was Cancer, we went to a Surgeon at Jefferson in Phila. so I feel like we are dealing with very reputable hospitals. Pre-Surgery his Ca19-9 results were as follows :
April 2024 639
June 2024 1720
Early July 2024 1886 ( All of this and we were still told they did not think it was Cancer )

July 2024 1887 ( This is when we went to Jefferson , Pre-surgery )
July 19,2024 403 ( Post Surgery - Unfortunately, they did not get clean Margins but did not know this until after the Pathology Report came back )

September 2024 632
October 2024 859

He has had no treatment at all due to the Drain.