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After remission ... has anyone discontinued Actemra or Kevzara?

Polymyalgia Rheumatica (PMR) | Last Active: 13 hours ago | Replies (16)
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@daroberts73

I am new to pmr , 6 month prednisone, then 5 months kevzara, now off prednisone! Kevzara connect was helping with payment, now nolonger helping! 5200. Per month. What are my options

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Replies to "I am new to pmr , 6 month prednisone, then 5 months kevzara, now off prednisone!..."
daroberts73 | @daroberts73 | 4 days ago

New doctor is going to move me off kevzara, meeting next week. Kevzara was good for me, can't afford. My drug ins has agreed to cover half the cost, but only on a monthly basis

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linda7 | @linda7 | 1 day ago

Kevzara Connect cut me off as well. Compared to you I guess my insurance company offered me a "great" deal: $1373 a month for Kevzara. I can't afford that. My doctor did an exam looking for evidence that I that I have GCA (giant cell arteritis) so he could get me on Actemra, which works similarly but is not Medicare approved for PMR. He is going to see how I do without the Kevzara and possibly do some "creative documentation" to get me on Actemra if I regress. I do have a headache at my temple and have had a biopsy to look for GCA. I might be one of the 25% of people with PMR who have sub-clinical GCA.

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