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DiscussionDid anyone get diagnosis with no breathing issues, life long controlle
MAC & Bronchiectasis | Last Active: Dec 10, 2024 | Replies (12)Comment receiving replies
Replies to "Hi, I was maintaining well until I came down with a cold before Thanksgiving, and everything..."
Gotta figure out how I am posting before I finish.
I am taking the antibiotics. I hadn't ever heard or thought of not taking them. But right now, I have to return to my activity and health level before this starts. I did get an appointment with the pulmonologist tomorrow when I went to my regular doctor yesterday and advocated that I was in trouble and something had to be done within the group of doctors who know what is happening. ER, or Urgent Care, will flip out and send me to the ER. They got me the prednisone and are raising my Breo strength, which is the main thing that needs to be taken care of to get me back to good. I found out through my regular doctor that the bronchial tubes are narrowing at the connection to the lungs. Once that is taken care of, all my symptoms should be gone.
The funny part is he is very interested in getting my lungs strengthened. That is one reason he doesn't want to use medicine to help me breathe, if possible, so my lungs will do it. He doesn't realize I have very strong lungs and lung compacity is above normal.
As I have more conversations with the pulmonologist and make sure arrangements are made so my calls are a priority, I will come back here to educate myself more. Right now, I feel I only have part of the picture, although he did show me my CT scan. I am going to get the full report tomorrow. I asked if the damage was from the infection, and he said no. Then I read somewhere that the type of damage is exactly what happens from the virus. So, I need the details of that so I can do my own research.
I always tell my students, when I have a job and students to teach, that they have to stand up for themselves. If they don't understand or need something else, we don't know unless they tell us. Then, they have to make sure that they are given what they need. That is what I am trying to do. It is hard to be infatic when you can get a good breath to use inflection in your own speech.