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DiscussionStruggling with decision to move forward with Allogeneic Transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Dec 11, 2024 | Replies (52)Comment receiving replies
Replies to "Thanks Lori... I'll reach out to @fortuitous and chime in on that thread. I did just..."
You will be in the best hands there. Both hematology and transplant programs are outstanding. My husband was diagnosed with high risk MDS about 13 months ago. We were referred to Mayo by his local oncologist and advised tgg gf at SCT was his hope for a longer life. At 74 with many other health conditions, it was no cakewalk. A donor was found and he had the transplant Aug. 22. Lots of twists and turns but we are both very confident we did the right thing.
Good luck to you, keep doing the research and asking all the questions.
I’m so glad you got your appt for Mayo! It’s my home away from home and you’ll be in the best of hands there! The hematology dept is 2nd to none!
If you’ve not been to Mayo before, here are a few links that might be helpful.
~Accommodation recommendations when coming to Mayo
https://connect.mayoclinic.org/discussion/what-are-your-accommodation-recommendations-when-coming-to-mayo/
~Your Tips on How to Get Off to the Best Start with a New Specialist https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
Rochester is easy to navigate and so is the Mayo Clinic. The buildings are all interconnected with great signage for directions and wonderfully helpful people in blue jackets to make sure you get where you need to go!
Make sure you use your new Mayo number to set up your account on the patient portal. It becomes your lifeline for communication between the clinic and you. You’ll get updates of appointment scheduling, test results, doctor’s notes, etc.
You mentioned having only one appointment so far. It’s one of the amazing things about Mayo…you go in for your initial appointment with the specialist and then boom, they work their magic and you get dropped into the schedule for tests/appointments while you’re there! I call it being Mayo-naised.
If you have any questions don’t hesitate to reach out. Are you within driving distance?