Thank you for your response. I had none or very little response (from what I remember) to pneumonia vax trial.
IgG’s are checked every 3 months but not all of them each time along with basic panels and whatever she may want depending on prior results. She will check all before next infusion.
The concern with provider is kidneys which bloodwork sometimes show on lower end/normal range with last result much improved so this is why increase from 20 gr to 25, which is a really the lowest amount given with the brand.
My husband said recently, the provider is more worried about kidneys than treating your problem. She is going on numbers and algorithms which don’t always work. When I first saw this provider she said the med I am on was easy to get started with and adjustments, change of brand are to be expected but last several months has said this can be a long process lets stay with same brand, dosage, and kidneys. I am not sure how much experience the few Dr’s have with these problems as it seems allergy patients are the majority of their practice.
The migraines, body and joint painI have had for many years before but after second or third infusion lessened by 80% or so. This is another reason we don’t understand why the waiting game where symptoms are now as bad as before first infusion and IgG levels dropping along with. I also do not experience any side effects from the med. I do take Benadryl/500 mg Tylenol before as directed.
In writing this it is very apparent I am not in the right place yet. I have this forum and knowledgeable people like yourself to thank.
I have a referral to another Dr (found out yesterday) so I see him in January, fingers crossed he is a better fit.
If not there is another Dr about four hours away as another possibility. I will stay proactive, thanks again, and many good days for you in your journey.