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Adhesive Arachnoiditis & the Effects on Walking

Chronic Pain | Last Active: 1 hour ago | Replies (39)

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@archie2

Hi and welcome—
Me too. My AA started in 1978 with an allergic reaction to OIL-based pantopaque contrast fluid for myelograms— no MRI back then! The industry changed to WATER-based pantopaque fluid in late 1978, but the damage was already done. I miss walking most of all. We had a large farm with a 400 year old Oak tree. I can’t get there anymore. Recently I’ve had my pump output increased 15%, caudal injections and cervical spine injections and the triple approach has helped a lot. I feel better and more hopeful than I have in years. Next step is to increase my exercise (stationary bike) and get in better shape, build strength and flexibility. Good luck in your long journey. Seems like you’re focusing on the right things! Archie

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Replies to "Hi and welcome— Me too. My AA started in 1978 with an allergic reaction to OIL-based..."

I've stopped PT but I suppose I need to go back. I am thinking of that tree. You gave it such as a visual give me a smile. Yes a tree. Thank you. I hope you get to walk to that tree again. If not there are always alternative ways of travel.
Thank you for that.

I miss going into the woods watching wildlife and such things people take for granted. I watch TV seeing people do things I know I will never do but as my surgeon told me when I was 16 years old , your never going to be a ballerina ! I feel grateful for the days I've had and want to say thank you for sharing this. Good luck to you. I'm on my own journey of acceptance and not giving up but I'm going to fight as long as I can. As some days are harder than others. I also grew up on a farm . Not that big but good memories.

BTW I'm Sherry.

Thank you for responding. I’m rooting for you and your efforts to get back to walking. The irony is that walking will help us…if only! This site has opened my eyes to so much information I haven’t had all these years. I’ve just learned about the progressiveness of AA and why walking and balance are becoming more difficult. I’ve always enjoyed early morning walks, observing nature and getting good exercise, and would like to continue. My injury occurred both during a test to determine which disc was suspect (disc-gram with disappating dye, you lie over a bridge on the X-ray table) and during surgery. The surgeon left a metal clip in my back to indicate where the injury starts. The new myelogram shows it and the damage very clearly. I had refused myelograms for years due to the prolonged and difficult recovery from surgery, so it was about 15 years before I understood why I have the pain, etc. It’s just now that I can understand the whole picture, including understanding just how close I came to paraplegia. I’m so grateful for this site and being able to talk with people who understand! I’ve also learned to be grateful for what I can do, that there are others who struggle with much more difficult issues.