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Driving and everyday chores, work?

Kidney & Bladder | Last Active: Dec 11, 2024 | Replies (21)

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@davem

Not well. At the end of my three days and 21 appointments, I was told that I had been accepted despite being high-risk. HOWEVER, a week later, at home thinking about how to reach out for live donors, I got a call saying they changed their mind. Dr. Prieto previously said yes, but apparently some other surgeons said no. I wish everyone else the best of luck and smooth sailing with their transplants. Happy holidays!

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Replies to "Not well. At the end of my three days and 21 appointments, I was told that..."

@davem So sorry that you did not get the final result you had hoped for from the evaluation. It is possible, however, to live a normal life for many many years with an eGfr in the 20's. That was my experience. Praying that you will be able to maintain the level of kidney function that you currently have for a long time without the need for dialysis. It is very possible. Meanwhile, wishing you the very best.

Can they explain the change in their minds re your transplant. Mayo is not the only high level care institution. Have you given thought of going somewhere else. Duke, John Hopkins, Temple to name a few. Knowing why Dr. P's team declined the you as a candidate would help greatly in seeking other expert Nephrology care. Wishing you the best and encouraging you not to give up and continue to seek care.