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@nkompa

I had a similar thing happen. I have a bicupsid aortic valve and aortic aneurysm. Had two echos, one that showed the ascending aortic aneurysm at 4 cm. Then a second echo that said the ascending aorta wasn't well-visualized (not helpful). Finally, had a CT scan for some lung issues (through primary care doctor), showing the ascending aorta at 4.4 cm. Asked the cardiologist about the differences; was told that the CT scan is the measurement that "counts." She says we are comparing apples to oranges between the echo and the CT and I shouldn't worry about the .4 cm increase in just six months. Hmmm ... that's a little hard to do when it's your aortic aneurysm, just saying. 🙂 I'm going to ask how often she will want a CT to monitor an aneurysm ... seems like a pre-req. So, looks like people like us should stay on top of our CT scans for an aneurysm.

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Replies to "I had a similar thing happen. I have a bicupsid aortic valve and aortic aneurysm. Had..."

I have Kaiser and they have a cardiac surveillance team. The Thoracic Aorta Aneurysm Surveillance sent an email that is time for my review and to schedule my CT scan which one the cardiologists have already requested. Meanwhile she who is impatient already asked my primary care to set it up but one of surveillance team straightened it out for this nervous Nelly. With little growth I have been cleared to wait three year until my next CT scan and of course they attach the do and do not reminders and what to do if I have an issue. I am also part of the Regional Thoracic Aortic Aneurysm Surveillance program. Not as exciting as a spy surveillance but I am happy with this program and the ability to call should I have any questions etc.

Hi, @nkompa,

Glad you wrote in..

I go to the cardiologist for an echo cardiogram every 6 months to get mine checked.

Interesting they used the phrase "apples and oranges" with you as well isn't it.
I'm trying to stay on top of it.

I am on a beta blocker.

I eat healthy and exercise every day.
Try to manage stress level.

I have found recently I may also have the marfan Syndrome.

I have other cardiac
conditions.

At the age of 33 yrs I had a cardiac arrest from a prolonged Q - T wave it led to a life threatening arrythmia and caused sudden instant death.

I survived that with CPR and again in 2015 I had another cardiac arrest from a defribilulator battery going dead.

Again I survived with CPR.

Also I have Mitral valve prolapse and Tricuspid valve insuffiency.

VT , and Atrial Fib.

When diagnosed in June 2022 with the aortic estasia at that time of 3.8 cm.

It is now 4.1 cm. an ascending aortic anuerysm.

Though they told me they couldn't see it on the last echo I had then said it was 3.4 cm which it is not it is 4.1 cm. I had it checked again .

There are other tests to view its size.

I would ask which one is safest.

I have been afraid of a dissection so I am being careful not to lift anything over a few pounds.

I wear my seat belt.

Take beta blocker to try and slow down the growth of it.

I try to eat a healthy diet.

Also try to manage my stress with mindfulness, singing and dancing .

Britt013