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"Parenting" a 23YO daughter with grand mal seizures
Epilepsy & Seizures | Last Active: Dec 19, 2024 | Replies (28)Comment receiving replies
Thank you for your response. I did not know about the field of neuropsychology! I totally agree that she has not accepted living with epilepsy. Deny and avoid! She does have a therapist and she went through an IOP mental health program after the most recent trauma but none of that was focused on living with epilepsy. I wonder if Mayo will be able to connect us to a neuropsychologist when we go there or if I will need to find one from home. We live in the wilderness 🙂 so it would be virtual anyhow.
Heather
Replies to "Thank you for your response. I did not know about the field of neuropsychology! I totally..."
Good Morning Heather - @adoptivemother
My neuropsychologist did my neuropsychological assessment in 2019, this is how I met her (I was facing some memory issues, and the doctor at that time ordered this exam). I was already having sessions with a psychologist, but she was not helping me much. This neuropsychologist was so caring during the assessment that after it I stayed with her. I am sure that at Mayo they can recommend you a good neuropsychologist with experience with epilepsy patients.
I started with her through face-to-face sessions, but then Covid came. We continued with online sessions and we continue this way. It works pretty well for me.
Chris (@santosha)
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Hi, @adoptivemother. I'm so glad you are connecting with @jakedduck1 @kb2014 @santosha, who have rich lived experiences to share with you.
When you go to Mayo Clinic, the epileptologist will surely be willing to connect you to a neuropsychologist. There are several in Minnesota. Is that the campus you are hoping to visit, or in AZ or FL, or elsewhere?
@kb2014 - thanks for sharing about the situation with your husband and your seizure risk. That would be challenging not having your life partner respect your disorder. I relate to not speaking to a relative about a certain subject, as you mentioned. I cannot talk to one relative about the news or current events, as our perspectives are so different that it's not fruitful for a good relationship.
You talked about your husband not wanting to pursue therapy or couples' counseling. Do you have a local friend who understands or at least respects your neurological disorder who provides some support? You also talked about trauma therapy. Is that something you'd recommend to others who have seizure risk?