I too, have severe adhesive arachnoiditis. I am also fused from C3 thru my sacrum. I am now having severe, unrelenting pain. I am a retired RN. I live in a suburb of Phoenix. I have tried for years to get a doctor to help , with no success. It takes about 5 or more months to even get an appointment with a specialist. Got a neurologist, met with him. He basically said there are no treatments, except steroids. He's given me Medrol dose pacs & valium. When the pain became overwhelming, he said i need pain management. Have been going to pain management for years ( it's a joke, a mill) I am now looking into getting a pain pump. I have all Dr Tennant's protocols & no one is interested in even looking at them. Think i am past this anyways, as i can't do most of what he suggests. It's beyond discouraging & no one even knows, or is familiar with this condition & they don't understand the severity of the pain. I am very depressed & feel hopeless. I can barely leave my apartment & have no more life. Sorry to be so discouraging. Would love to have someone to talk to. Lauren Seavertson