Yikes, as Cathy said, you need to get to an answer.
I see you say you have severe but controlled asthma - that is definitely a pre-condition that can make us susceptible to MAC and Bronchiectasis. It sounds to me like you need to call the Pulmonology Group (or look on their website) to see if they list anyone who specializes in Bronchiectasis, MAC or NTM (another term for MAC). It is pretty rare, so not many doctors are experts in it.
I understand the feeling of "going downhill" - when I was first diagnosed and started taking azithromycin, ethambutol and rifampin, I felt even worse than before due to both the infection and the side effects of the medications as my body adjusted to them. I had nausea, body aches fatigue and fever, and wondered if I would ever feel well again! But then, the drugs, healthy food, airway clearance and rest did their job and I gradually got better. That was 5 years ago (seems hard to believe now how sick I was then) and I have been infection free since then.
Do you think that might be what is happening to you?
Did the doctors explain that this is a very slow-growing bacteria which has been in your lungs for a long time, and it can take many months to clear up? Or that you will need to take the antibiotics for a year or more?
I don't blame you for being upset - the poor communication would not make me happy either. Have you been able to speak to someone directly now that Thanksgiving is past?
It does sound like what I might be going through. I am on an oral steroid to open the bronchial airway. My only contact with the pulmonologist was the appointment on the 3rd of Dec. Even today, I had to leave a message for a call back on their appointment line. I have an appointment with my GP, and I hope he will help me. qw
The steroids and prednisone I got over the weekend have made a world of difference. I need to convince my GP that I need them, and he will work with me until I can get things settled with the Pulmonologist.