Which one to choose: Evenity, Tymlos or Forteo?

@normahorn 100%

@ willow5 so your femoral neck on both sides have osteoporosis (mild) and the impending surgery explains why you are being put on Evenity and why it is being covered.

My friend has met with several surgeons about a hip replacement and none have mentioned bone density. She is late 70's and has never had a DEXA scan (she asked me what it was). I will pass your info on @willow5. Very helpful!

Hello there. Welcome to the joinery of no sure answers as everyone is a bit different. I have no experience with Tymlos and was not offered that as an option. I wonder if that is more popular in the States? I am in Canada. My T-score was -3.5 and I had experienced 13 consecutive compression fractures in my spine when I went on Forteo. It literally saved my life. That was 8 years ago and I have not fractured since. Now I am need of another booster and had hoped to start Evenity, but still waiting for approval. I have researched and heard very good things about it on this site about Evenity. For some reason, Forteo was approved, and even though I already did the 24 months of it before, I have agreed to 6 months while I await approval for the Evenity. This time I went with generic brand of Forteo and find no difference to when I was on brand name. In fact, perhaps less initial side effect of mild headache and upset stomach. Forteo provided a travel case with refreezable ice pack to pick up from pharmacy for travel. Generic brand did not, but pharmacy just gives you a freezer pouch to get you home with. Hope that helps. : ). I am now 66 yrs old and very active with 6 grandchildren!

Dear jackieo1919,
Thanks a lot for your sharing and very glad to know that you "feel stronger"!
Best regards
Ning

My rheumatologist also told me that none of his patients had side effects from osteo meds when I asked. He recommended Evenity, Forteo, and Tymlos, but strongly suggested to go with Evenity. And then I found this forum and realize that too many people experience some type of reaction that I know now he wasn't truthful. Plus he's got a really big practice and infusion center and sees a lot of patients, so I'm thinking how could this be?

@doreenc Side effects are listed online with frequency of occurrence. I don't know why doctors don't refer us to that.

That said, probably the majority tolerate these drugs very well and those of us with side effects tend to post more. My impression on this forum is that Evenity is tolerated well by many (maybe the most tolerable reports) and many of us tolerate Tymlos by titrating the dose.

And adverse reactions can range from very mild to very severe. To deny that any of his patients have had some reaction is unethical, in my mind. The pharmaceutical companies themselves list common and rare reactions.

@normahorn totally agree. As I said the ignorance (or dishonesty) of doctors on the subject of side effects is mystifying. I don't trust them and talk to a pharmacist instead. Even the endo I like says things like "I haven't heard that from anyone else" when the effect I mentioned is clearly on the online list. All they have to do is google drugs.com or look at the actual drug inserts to validate our experience.

I think being female makes it worse. I am reading a great book "The Lady's Handbook for her Mysterious Illness" that hits the nail on the head.

Dear broken13,
Thanks a lot for your sharing and glad to know you are "very active with 6 grandchildren"!
Best regards
Ning

@ninglike you are so nice and thoughtful. Have a nice holiday season.

Hey Lady
I’m in the same place as you and I chose Evenity. I just received approval for my first dosage and I’m waiting on the facility to contact me for my first dosage. I’m not gonna lie, I’m scared of the potential side effects. So let’s keep in touch to compare notes.
I chose this because I did not want to give myself injections and have to worry about travel restrictions. Plus it’s only 12 months on Evenity. I thought I would throw that in there.