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My husband started taking donepezil a few months ago. It's impossible to say with certainty if it's slowed down his decline because I can't know what it would have been without the medication. But, it seems to have slowed it down. He used to have periods of steep cognitive decline interspersed with milder or stable periods. I haven't seen a period of steep decline since he started the drug. He hasn't experienced any negative side effects.
I understand your reluctance to "rock the boat." I feel the same way about procedures and medications that are offered to my husband. I just don't want to take a chance to make something worse! Good luck to you!
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I agree with you on what effects a cdrug might be having. It's a moving target. My wife is trying nuplazid. It's supposed to help with hallucinations. It takes 5 to weeks to see changes. The normal progression of dementia countered by a drug... I'm not sure I know how to tell if it is helping. Nuplazid is $4700/month before insurance...
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Thank you. I guess it doesn’t hurt to try. He did not sleep well at all last night after many good nights. If he were in Aricept I would have blamed the drug, but there were no changes. We haven’t even picked it up from the pharmacy as they were out of stock.
Taking it one step at a time, one day at a time, one hour at a time- who knows??