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I been having a lot of symptoms and I don't know what's wrong nor do the doctors. It started about a month ago. Let's start by saying I had the y bypass surgery for weight loss surgery back in August 2023. Well the last month has been terrible. My blood sugar has been reaching high 400's but been told it's normal for people that has had weight surgery but that's not all that's been going on. I have migraines everyday my leg bones and arm bones hurt, including sharp pain and feels like electric pain in my limbs and I have had swelling in my hands, face, eyes. I a lso have sharp pain in my right side of mt stomach and groin. I have also stop driving because I either have been falling asleep or having some sort if passing out, I'm not sure of which. When I sleep at home I wake up every hour. Sometimes I can go back to sleep, sometimes it takes a couple of hours. I have blurry vision a lot. I feel exhausted all the time. I don't know what's going on and I feel. like nobody will listen to me. And there's more symptoms. My face and head feel hot all the time but I'm not running a fever. My legs hurt so bad I walk with a limp, every time I eat or drink I feel like throwing up after a couple of bites or drink, my mouth burns when I eat, drink, or brush my teeth. I glands hurt in my neck, by my jaw, and feel like they are swollen
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My kid has type 1 diabetes. For her a blood sugar in the 400's would cause at least some of those symptoms, including the sleepiness -which might actually be indicating real trouble (at least with type 1)- are you testing for ketones? I don't see how you can evaluate any of your symptoms until blood sugars are closer to normal. Hope you can get help!
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2 ReactionsAccording to the specialist 400's is normally for someone who had weight loss surgery
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1 ReactionI would get some ketone strips at the pharmacy and test urine for ketones.
Any surgery is going to raise blood sugars but those high blood sugars need to be treated, not only because they are toxic but because they affect healing and even infection. If it was a GI specialist who said it was "normal" they may not know much about diabetes and blood sugars. To be honest it has been our experience that many providers outside of endocrinology are too accepting of high blood sugars. They need to be managed, not accepted. Very high blood sugars like 400 can cause some of the symptoms you posted, both directly and indirectly.
https://www.verywellhealth.com/after-surgery-infection-and-glucose-3970391#:~:text=The%20stress%20of%20an%20operation,%20along%20with%20potential
How Uncontrolled Levels Impact Surgery and Recovery
Blood sugar that's even slightly elevated can lead to delayed healing and increase your chances of getting a wound infection from less than 2% to almost 18%. In general, the higher the blood sugar, the higher these risks.3
Additional risks include:
Slow or poor wound healing
Fluid and electrolyte imbalance
Kidney issues
Heart and/or lung problems
Neurological complications
Stroke
Post-surgical death1
This increased risk is why the hospital may check your glucose frequently as you recover from surgery, whether you have diabetes or not.
Post-Surgery Management Tips
Your diabetes needs to be well controlled after your surgery as well to prevent complications such as wound infections, slow healing, and increased scarring.1
Duggan EW, Carlson K, Umpierrez GE. Perioperative hyperglycemia management: An update [published correction appears in Anesthesiology. 2018 Nov;129(5):1053]. Anesthesiology. 2017;126(3):547–560. doi:10.1097/ALN.0000000000001515
If you're not consistent about taking care of yourself, taking medications as prescribed, and routinely checking your glucose levels, seek help from your healthcare team. They can work with you on an effective treatment plan.
A lot of factors can make it difficult to eat regularly while you're in the hospital, such as vomiting, lack of appetite, stress, or pain. If you're not eating well or if you've been prescribed medications that may increase your blood sugar, you may need to stay longer for blood-sugar monitoring.11
Keep in mind that the following are essential to a quick and healthy recovery:
Eating appropriate foods after surgery (whole grains, fruits, vegetables, and lean protein)
Frequently checking your glucose levels
Taking your insulin or other diabetes medications as prescribed
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4 ReactionsThe surgery was over a year ago. And it was an endocrinologist that told me this. They want me to see a sleep specialist. To be honest I'm going by what they say. I thought it was high going over 200. But what do I know
High blood sugars make you sleepy. Ketoacidosis is dangerous. I hope you are testing your ketones. I have never heard of an endocrinologist saying 400 is okay. If my daughter had that blood sugar and wasn't on insulin, we would be in the ER. Again many of your symptoms can be from the high blood sugar. (It is always possible that sickness causes the 400 too- cart and horse.) You need better medical help in my opinion.
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2 ReactionsYes i started a week ago with ketone strips and so far it has been negative.
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1 Reaction@dgraham6662 wow that is strange but reassuring.
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1 ReactionHave you been tested for pots syndrome? Just a thought..
None of this sounds “normal” to me. BG of 400 is far from normal just to mention 1 of many. You need to get to a Dr that will get to the bottom of this. Do you have an endo or internal med doc? Good luck and hang in there don’t give up girl.
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1 ReactionWhat blood tests have you had, such as a1c or fasting blood glucose test? Your symptoms are concerning and some of them sound like those I had when I had diabetic ketoacidosis. It was horrible, serious and put me in ICU. I’d make sure the ketone strips you are using are good and test often, but with high 400 range BG, I’d go to an ER if my doctor couldn’t get it down, Are you taking insulin? I’m not sure I understand the logic of waiting on a 400 blood sugar level to come down naturally. I hope you find help soon,