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Leiomyosarcoma: What can I expect now?

Sarcoma | Last Active: 13 hours ago | Replies (66)

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@kadie22

I have Leimyosarcoma. Diagnosed in 2020. Post hysterectomy, necrosis fascitis complications, chemo, and radiation. I am told my cancer is "inoperable". I am lucky as I am doing well the 4 yrs since dx. Wondering if anyone else told "inoperable" and what follow up care they are having. I feel very abandoned and can't get answers as to what to expect.

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Replies to "I have Leimyosarcoma. Diagnosed in 2020. Post hysterectomy, necrosis fascitis complications, chemo, and radiation. I am..."

Hi @kadie22, you might be interested in these related discussions:
- Diagnosed with Uterine Cancer (Leiomyosarcoma)
https://connect.mayoclinic.org/discussion/covid-19-and-cancer-2/
- Uterine leiomyosarcoma with lung metastasis: Treatment options?
https://connect.mayoclinic.org/discussion/uterine-leiomyosarcoma-lung-metastasis-treatment-options/
See all https://connect.mayoclinic.org/search/?search=Leiomyosarcoma+uterine

Kadie, you mention that you had a hysterectomy. Since then you've been told your cancer is inoperable. Has the cancer spread beyond the uterus?