Sling, or artificial urinary sphincter?

Posted by peterj116 @peterj116, Dec 4, 2024

I'm getting way ahead of myself here, but terrible incontinence (9 pads per day) after 10 weeks is getting me down.

Given that I still can't move my pelvic floor muscles at all after 5 physio sessions (the physio was so frustrated, she's fled all the way to Canada. So now I have to start again) I'm thinking that surgery may be on the cards soon.

Has anyone had the sling or artificial sphincter done?
My GP was horrified at the prospect of the sling - saying that recovery is worse than the incontinence.

What is the recovery & success rate like for either procedure?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

I think the surgeon want to see me again before Christmas (probably to give me more crap about my inability to move my pelvic floor - he acts like I'm the only guy in medical history that can't do it) so I'll see how long his tolerance for multiple pads per day is before he gives up & shoves me back into the operating room.

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Profile picture for lee61 @lee61

My understanding is that the dr does not want the cuff around urethra to close off completely, Wears urethra out in that area. So I wear a pad during the day . Most days not to ..heavy with urine . Coffee, tea. Mnt dew will cause more leakage so I don’t over drink that stuff. The dr and his nurse explained and showed me how to hold the two tubes and squeeze the end of pump in scrotum to open cuff. This is the pump in scrotum and some of the instructions. Little bump on top of pump shuts it off. Dr said never shut it off. Let a urologist do that.

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Lee
I was told by my Uro to wear a medical alert bracelet with: "Artificial Urethral Sphincter - Do not catheterize".

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Profile picture for gmul @gmul

Lee
I was told by my Uro to wear a medical alert bracelet with: "Artificial Urethral Sphincter - Do not catheterize".

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Correct I have a card in my wallet explaining about the AUS, also in my truck and in my wife’s car. Bracelet says…. Consult urologist before urethra catheterization ..

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Profile picture for lee61 @lee61

Correct I have a card in my wallet explaining about the AUS, also in my truck and in my wife’s car. Bracelet says…. Consult urologist before urethra catheterization ..

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You're lucky. All I've got is an 'I need to pee. Let me use your staff toilet' card.

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3 to 4 depends a day on a very active day. my urologist is pushing the artificial sphincter very strongly.
He says the sling is worthless. My surgery was in 2018 and to be fair I have not really tried to maximize my kegle training until recently. i was curious about others experiences with either product. i am not too crazy about a device implanted in to my body with the possibility of problems when i am not near medical help.

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Profile picture for survivor5280 @survivor5280

It's interesting this topic came up. I'm seeing a pelvic floor therapist preemptively now (pre-surgery) along with a personal trainer to try to be as ahead of the curve as I can be and the therapist was talking about another patient with the AUS who raves about it and has even offered to talk to any of her patients about it. My first reaction was "well there's a sling that doesn't require activation" but it's hard to argue against the logic of regaining the second sphincter that was removed since it's something I've lived my whole life with. Given what I've read elsewhere and even in this thread, I think if I end up needing anything I'll opt for the device over the sling.

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@survivor5280
You're smart to do the pelvic floor training pre-surgery!

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Has anyone tried the PelviDex pelvic floor training device?

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Profile picture for maumee1967 @maumee1967

3 to 4 depends a day on a very active day. my urologist is pushing the artificial sphincter very strongly.
He says the sling is worthless. My surgery was in 2018 and to be fair I have not really tried to maximize my kegle training until recently. i was curious about others experiences with either product. i am not too crazy about a device implanted in to my body with the possibility of problems when i am not near medical help.

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@maumee1967
With that much pad use the AUS makes a lot more sense. If your PSA starts to rise and you need radiation, then the sling doesn’t even work well. Sling is a lot less effective than the AUS.

There are the number people here that have had the AUS and have been very pleased with it. I’m getting one installed in April. Had surgery and my PSA rose so I had salvage radiation. The only option is the AUS for me.

Since you have not had radiation, there is another option. The ProACT device works quite well and a few people in this forum have used it and it worked well for them. Urologist that have used this device have been very happy with it. Like the sling it does not work with radiation to the prostate bed because that hardens the urethra

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Profile picture for jeff Marchi @jeffmarc

@maumee1967
With that much pad use the AUS makes a lot more sense. If your PSA starts to rise and you need radiation, then the sling doesn’t even work well. Sling is a lot less effective than the AUS.

There are the number people here that have had the AUS and have been very pleased with it. I’m getting one installed in April. Had surgery and my PSA rose so I had salvage radiation. The only option is the AUS for me.

Since you have not had radiation, there is another option. The ProACT device works quite well and a few people in this forum have used it and it worked well for them. Urologist that have used this device have been very happy with it. Like the sling it does not work with radiation to the prostate bed because that hardens the urethra

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@jeffmarc
Thanks for the reply. My PSA jumped from .20 in July to .23 at the end of the year. The PET scan showed some small “hot spots” and I have an appointment Wednesday morning to get started with the CT simulation before radiation. My thought is to get the radiation out of the way and worry about the type of surgery after I get rid of the cancer.

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Profile picture for maumee1967 @maumee1967

3 to 4 depends a day on a very active day. my urologist is pushing the artificial sphincter very strongly.
He says the sling is worthless. My surgery was in 2018 and to be fair I have not really tried to maximize my kegle training until recently. i was curious about others experiences with either product. i am not too crazy about a device implanted in to my body with the possibility of problems when i am not near medical help.

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@maumee1967
I use one to two pads a day. My urologist told me that he didn't think an artificial sphincter was right for me because it would have to be replaced in about 6 years. I am 70, I guess I am getting were they don't want to do surgery unless they have to. He is recommending a sling. Then he went on about how it wouldn't cure me and that I would still dribble. Why would I go through the risk of surgery when I would still have to wear a pad. If I leaked more, I might consider it. But I can live with what I have. I have accepted the fact that I will be using a pad for the rest of my life. I still live a full life and the cancer is gone.

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