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How do you cope with Mixed Connective Tissue Disease (MCTD)?

Autoimmune Diseases | Last Active: 2 days ago | Replies (107)
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@francesalfs

Hello everyone feeling and dealing with mctd this is my first connection. I was diagnosed 3 months ago and it had been a huge psychological adjustment. I was always able to do all sports to quite a high level for my age 73. I would place in cross country, biking
and running events . Now I can't it was a big part of my social and fun life. I'm learning to do mobility yoga water aerobics and other things. Luckily I like to swim. Pain management is hard. If anyone has ideas besides euthanasia let me know..just kidding but sometimes I feel that way. I 😘 like having my wits about me but pain is exhausting. I feel for all of us learning to live and enjoy this life and the people we love. I want to stay happy to and care about others.

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Replies to "Hello everyone feeling and dealing with mctd this is my first connection. I was diagnosed 3..."
francesalfs | @francesalfs | Dec 8 6:26pm

Thanks

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francesalfs | @francesalfs | Dec 8 6:27pm

Very nice all

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marye2 | @marye2 | Dec 8 7:58pm

I kept all my PT exercise info, added some yoga and I do it whenever needed. It would be better on a schedule, but I am bad at that. I go to a Pain Dr and have a small dose of Percoset for nighttime: with good sleep, I can have good days. Topical things I use: splints for wrists, knee, lidocaine 4% patches on the main pain spot (avoid using several at one time), magnesium spray or epsom salt baths, quality CBD ointment on joints, cold/hot packs. I find swelling in legs is helped with compression socks, or legs up the wall for twenty minutes at the end of the day. I use edema massage (toes to torso, fingers to torso) as needed.

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