Post treatment support

Posted by sue417 @sue417, Dec 6 9:08am

Hi
I just wanted to share with everyone.This fantastic book I found on amazon.
The Cancer survivors companion. Practical ways to cope with your feelings after cancer.
I wish I Would have found this six months ago.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

sue417 | @sue417 | Dec 8 9:20am

In reply to @heldewski "Just tried this. Not seeing a signup. Maybe because I’m on my phone? It starts with..." + (show)

You siginup then once you do your profile hit the 3 tabs at the top. When that window opens, hit connect, then go down to the bottom.It says virtual meet ups open that and just read and do the prompts

heldewski | @heldewski | Dec 8 9:20am

In reply to @heldewski "Just tried this. Not seeing a signup. Maybe because I’m on my phone? It starts with..." + (show)

I went to Resources this time. Found it.

sue417 | @sue417 | Dec 8 9:22am

In reply to @auntieoakley "Thank you @sue417 for sharing this resource it is a pretty great book. Mayo came out..." + (show)

Hi
No I am In canada and the zoom meetings are in USA. There are people in our meetings from all over the world

Colleen Young, Connect Director | @colleenyoung | Dec 8 2:39pm

In reply to @heldewski "I tried an aromatase inhibitor and STOPPED. There is not enough evidence it does what’s hoped..." + (show)

Hormone therapy is proven to be an effective treatment for breast cancers that are found to have receptors for the naturally occurring hormones estrogen or progesterone. Aromatase inhibitor therapy is one of the most effective ways to treat ER-positive breast cancer in people who have gone through menopause. Studies show 95% of people who receive aromatase inhibitor therapy after breast cancer surgery don't have breast cancer signs five years after completing treatment.

Aromatase inhibitor therapy has side effects that may affect your quality of life. For some people, these side effects can be managed. The choice to discontinue treatment is a personal choice. If you’re taking an aromatase inhibitor, you may wish to talk to your oncologist or symptom management nurse about ways to reduce side effects so you can continue treatment that helps you live free of breast cancer.

Strength and weight bearing exercises and a positive attitude are not a substitute for hormonal therapy. That said a healthy lifestyle that includes eating well and physical activity as well as taking care of your emotional health contribute positively to one's overall health and wellbeing.

sue417 | @sue417 | Dec 8 4:19pm

In reply to @colleenyoung "Hormone therapy is proven to be an effective treatment for breast cancers that are found to..." + (show)

Hi
My radiologist told me that because I was stage 0.It was not a priority to do that A.I. I already have osteoporosis with a fracture In my spine. Plus the side effects of doing 1 week of tamoxifen was a nightmare. It's definitely an individual choice.

katgob | @katgob | Dec 8 5:38pm

In reply to @heldewski "Just tried this. Not seeing a signup. Maybe because I’m on my phone? It starts with..." + (show)

breastcancer.org?
https://community.breastcancer.org/en/discussions?
Cut and past the line above and to the breast cancer .org page you will go. The log in for registration is on the top right.

myoga | @myoga | 6 days ago

In reply to @colleenyoung "Hormone therapy is proven to be an effective treatment for breast cancers that are found to..." + (show)

Thank you! AIs such as Anastrozole or Exemestane must have gone through a lengthy process including clinical trials and independent review of data to get approval from FDA. So the evidence that they prevent cancer from recurring must be substantial! Though they are not foolproof, I’m taking my chance with them because my cancer is feeding almost 100% on estrogen. My side effects are tolerable though. I understand that for some the side effects too unbearable to continue.