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Looking for Others with Brain Tumors
Brain Tumor | Last Active: 2 days ago | Replies (12)Comment receiving replies
Yes, I just had a hemangioma the size of a grapefruit removed last November. It was benign, thank goodness, but it did leave me with some deficits. Unfortunately, I still have two smaller tumors in my skull that they’re monitoring, probably for the rest of my life. My deficits are permanent hearing loss, I’ll never be able to smell or taste food again and because they left some of the large tumor in my head, I have peripheral vision loss in my right eye. My recovery was rough, I had to go PT, OT, speech therapy, etc to get back on my feet. But all in all I’m doing very well. How are you doing overall?
Replies to "Yes, I just had a hemangioma the size of a grapefruit removed last November. It was..."
I had most of my right temporal lobe removed. It was done by a skull base neurosurgeon and other than a hyper sensitive right ear am doing well. Originally told I would be in neuro ICU 4 days, moved to neuro rehab in 1 day. Told to expect 10 day stay. At day 2 exceeded discharge criteria. Not bad for a 73 year old. Now 8 months out. MRIs clean. Brain elasticity allowed normal neuro exams since O.R. Even the chemotherapy has been tolerable. Other than slight nausea after 4 days.
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My husband had two brain tumors. Removed the larger one and small one inoperable. Surgery was 9/20/25. Biopsy came back as Glioblastoma. Also discovered two liver tumors. Biopsy was inconclusive as
to type of cancer. After tumor board studies it appears to be Glioblastoma which is extremely rare for it to metastasize to liver. Has just completed 6 weeks of daily radiation on brain and daily temolozide. Next is y 90 treatment for liver. In 3 weeks a MRI on brain. He has been very positive on this and no ill effects at all. Prayers to all.