Best diet for those with Collagenous colitis

I too have collagenous colitis. I have not been given a specific diet by my gastroenterologist but certain foods do not agree with me, raw vegetables and raw fruit, oatmeal, any product with bran in it and popcorn.

Yup. I can't eat anything with fiber in it or I get pain and bloating and constant watery stools. (Very difficult for this former vegan.) Luckily, I'm not gluten or lactose intolerant and ice cream doesn't cause problems. My drug of choice. "-}

I’m now on Entyvio infusions, every 8 weeks, and I’m doing much better, symptoms under control. I just can’t seem to gain any weight, don’t know if it’s because of the infusions or my gastric condition.

Does Mayo Clinic have a suggested comprehensive diet (what to eat/drink and what not to eat/drink) for those of us who suffer with Collagenous Colitis?

I was diagnosed in October and am currently on a course of Budesonide, which helps. I also have Exocrine Pancreatic Insufficiency, so Creon is also on my menu. Lost 15 pounds in two months but now appear to be holding steady. My triggers so far are beans and raw veggies. I used to eat salads for lunch almost every day, but no more. Tried chili last night and the beans set me off, so they are off my menu for good 🙁 I have been all over the internet looking for a recommended diet for collagenous colitis but so far no luck. It would be great if the Mayo Clinic could provide something!

It's crucial to work closely with your healthcare team to find what suits you best. Some general suggestions might include a low-fiber diet, avoiding certain trigger foods like caffeine or spicy foods, and opting for smaller, more frequent meals. However, personalized advice is key, so consider discussing your specific situation with a healthcare professional for tailored recommendations. Wishing you the best on your journey to managing collagenous colitis!

Hello, I’m new to this group. I was recently diagnosed with the same two issues, EPI and Collangeous Colitis. I’m on Budesonide and Lomotil for the CC and Creon 36,000 units for the EPI. I, too, am trying to figure out what to and not to eat with both of these conditions. My GI dr said no dairy or ibuprofen for the CC and minimal fat for the EPI. I’m lost and honestly the Budesonide doesn’t appear to be working. So I’m not sure what to do next. I’m eating toast, plain chicken, rice, jello, egg whites and low fat soups. Unfortunately I’m of little help.

Interestingly, I tried all of that as well but really didn’t see improvement until I gave up gluten for about six months. It was hard at first but I have found many excellent gluten-free foods that make me feel less deprived. Last stool test showed my EPI improved from severe to moderate and my intestinal inflammation from severe to normal. I still have to minimize raw veggies and I occasionally eat sourdough bread but really watch ingredients in commercially made products. I continue to take 3 mg Budesonide and 1 mg of Imodium daily and feel pretty decent most days. It’s not perfect, and is definitely a trial-and-error process to find what will work.

Unfortunately I went gluten free for about 7 months, it didn’t make a difference. These diseases, especially the CC has been debilitating, it’s making my life miserable. I just had a year ago a tumor the size of a grapefruit removed from my head, non cancerous, thank goodness but it’s been a long road to recovery and now I’m dealing with this, yep, I’m frustrated. Oh and very little information from my GI doctor. I’m thrilled to hear that you’re doing better, that’s great news

The worst of it is that we are pretty much left in our own to figure these diseases out. Meds help, but until we determine what foods work for us and what don’t, we are miserable. And what works for one person doesn’t for everyone else. I am so sorry you are having such a rough time.