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@lauramae3

Thank you again for your message. Bill just had his operation August 7th, so all of this is relatively new. Baby steps I guess. Coloplast who manufactures the appliances and products we use was very helpful. And we plan to contact the Ostomy clinic next week. Fingers crossed. Bill just continues to lose weight and has no appetite. Need to do something!!!

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Replies to "Thank you again for your message. Bill just had his operation August 7th, so all of..."

In my experience, the only people who have hands on information are WOC nurses who work with all ostomy issues. They have been my ONLY option. I love my GP but ostomy care is NOT her specialty and ditto for the 3 gastro dr’s who I have seen (and they were less than helpful) and my Mayo surgeon only directed me to ostomy specialists; i.e. WOC nurses. I’m only 1 year into my ileostomy and it’s been a hard lesson to learn that most dr’s know less than I do because we are a small minority of their practices’ and although they may have basic information they can not assist you with aftercare. Trust me, I learned very quickly that an ostomy nurse is the best and only choice for aftercare issues. I still see my nurses weekly and sometimes more often to help me with all issues I’ve encountered and I’ve had plenty! And it took 9 months to finally find the right equipment that works for me. SO much trial and error before I became comfortable with the product I was using. I am finally in a good place after 11 months of practice/learning what works for me. You will discover that soon when you visit a wound care/ostomy clinic. Good luck and hang in there. I lost 20lbs after my surgery last December and it’s taken me a year to gain that weight back. You will get better!!! 💕🙏