1. < Prostate Cancer

Dr Mark Scholz/PCRI

Posted by ava11 @ava11, Nov 24, 2024

Anyone here is a patient of Dr Mark Scholz of Prostate Cancer Research Institute. I need to get a second opinion from an Oncologist about how long I should be on Orgovyx based on the risk/benefits. I would on Orgovyx for 9 months end of December.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

jeffmarc | @jeffmarc | Dec 7, 2024
In reply to @ava11 "jeffmarc, You seem to be pretty knowledgeable about Prostate cancer. I just got my Ultra Sensitive..." + (show)
@ava11

jeffmarc,
You seem to be pretty knowledgeable about Prostate cancer. I just got my Ultra Sensitive PSA test results. It is 0.05 after being on Orgovyx for 8 months(Started on April 1st). My last of my SBRT treatment was on April 18th. My previous PSA was 0.06 on October 7th. In 8 weeks it dropped by 0.01.
The only side effect I really feel is low energy. There were some changes in biomarkers, but nothing terrible. In spite of Dr. Schulz's advice, I feel like I should continue with my engineering mindset until my PSA stops decreasing or I am feeling really terrible!
What is your opinion? Any one can chip in, of course.

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Your PSA is undetectable and dropping. I don’t see any reason to change anything. Radiation treatment doesn’t always bring the PSA down to .01 or less immediately, for some it can take up to two or three years to get to the lowest point

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ava11 | @ava11 | Dec 7, 2024
In reply to @jeffmarc "Your PSA is undetectable and dropping. I don’t see any reason to change anything. Radiation treatment..." + (show)
@jeffmarc

Your PSA is undetectable and dropping. I don’t see any reason to change anything. Radiation treatment doesn’t always bring the PSA down to .01 or less immediately, for some it can take up to two or three years to get to the lowest point

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are you suggesting I should stay on Orgovyx for now?

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jeffmarc | @jeffmarc | Dec 7, 2024
In reply to @ava11 "are you suggesting I should stay on Orgovyx for now?" + (show)
@ava11

are you suggesting I should stay on Orgovyx for now?

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I am not a doctor so I cannot advise you on what to do with your prescriptions. In the CSC online prostate cancer chat three weeks ago, the doctor (GU oncologist) told somebody that after Six months of undetectable they could Stop Orgovyx even though they had a Gleason above 7. I’ve heard that The NCCN recommends longer. So you need to ask your doctor what he thinks You could always get a second opinion from Dr. Sholtz.

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ava11 | @ava11 | Dec 7, 2024

Yes, I will not make any changes with regards to ADT duration without consulting my care team(Medical oncologist, Radiation Oncologist, Urologist, Primar care physician)

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