Helen, Volunteer Mentor | @naturegirl5 | May 4, 2023
@afowler876 Is this a procedure recommended by your oncology surgeon for yourself or for a loved one? I’d like to offer my concern for being in the position to make such a huge decision as this.
Here is a video of Dr. Amanika Kumar from Mayo Clinic explaining what pelvic extenteration is and the reasons it is done. Dr. Kumar was my GYNOncology surgeon for a hysterectomy when I was diagnosed with endometrial cancer.
@afowler876 Is this a procedure recommended by your oncology surgeon for yourself or for a loved one? I’d like to offer my concern for being in the position to make such a huge decision as this.
Here is a video of Dr. Amanika Kumar from Mayo Clinic explaining what pelvic extenteration is and the reasons it is done. Dr. Kumar was my GYNOncology surgeon for a hysterectomy when I was diagnosed with endometrial cancer.
My daughter was diagnosed with stage 3b cervical cancer. Already completed chemo/radiation, she is almost 1 year out. Recent CT shows soft tissue mass, biopsy done, but Dr said he would do hysterectomy it would just be a pelvic exenteration which to me is to agressive since her cancer is localized at this point. Doesnt really agree with a radical hysterectomy due to not being able to get clear margins.
My daughter was diagnosed with stage 3b cervical cancer. Already completed chemo/radiation, she is almost 1 year out. Recent CT shows soft tissue mass, biopsy done, but Dr said he would do hysterectomy it would just be a pelvic exenteration which to me is to agressive since her cancer is localized at this point. Doesnt really agree with a radical hysterectomy due to not being able to get clear margins.
@afowler876 This must be frightening for both you and your daughter. Are you in the U.S.? Is your daughter seeing a doctor in one of the national cancer centers? Would she like another opinion? Mayo Clinic is on this list and there are many others across the country.
@afowler876 This must be frightening for both you and your daughter. Are you in the U.S.? Is your daughter seeing a doctor in one of the national cancer centers? Would she like another opinion? Mayo Clinic is on this list and there are many others across the country.
We are in the U.S, and yes its very frightening as she is only 26yrs old. We arent at one of the national cancer centers and I am considering a second opinion.
We are in the U.S, and yes its very frightening as she is only 26yrs old. We arent at one of the national cancer centers and I am considering a second opinion.
@afowler876 Your daughter is so very young to be facing cervical cancer and such a decision. It’s so good that she has you to advocate for her. I hope your daughter makes an appointment for that second opinion. Will you let me know what she decides and where she will go?
@afowler876 Is this a procedure recommended by your oncology surgeon for yourself or for a loved one? I’d like to offer my concern for being in the position to make such a huge decision as this.
Here is a video of Dr. Amanika Kumar from Mayo Clinic explaining what pelvic extenteration is and the reasons it is done. Dr. Kumar was my GYNOncology surgeon for a hysterectomy when I was diagnosed with endometrial cancer.
Helen I'm interested in getting a second opinion from a Dr at Mayo in Jacksonville. Would you know a Dr that specializes in endometrial cancer recurrence, and options for treatment?
@fowler876:
You may also wish to consult docs at MD Anderson, where they have some innovative radiation treatments, using an MRI linac that has been shown to work very well on certain types of recurring gynaecological cancers. Very tolerable treatment without surgery. If you reach out to them with her records and pathology they can advise whether this would be suitable for her. Best of luck and my best wishes.
PS. You absolutely need to work with an excellent specialized cancer centre rather than your local docs and hospital.
Helen I'm interested in getting a second opinion from a Dr at Mayo in Jacksonville. Would you know a Dr that specializes in endometrial cancer recurrence, and options for treatment?
@riverland889 I don't know of any doctors in Jacksonville at Mayo Clinic. If inquiring for myself or a member of my family I would start with my primary care provider or my local oncologist (if I had been treated locally for endometrial cancer) and ask for a referral to Mayo Clinic. That's how I first was seen at Mayo Clinic in Rochester. My gynecologist referred me after I first had the diagnosis of endometrial cancer.
You can self refer at this link. Or as I mentioned above you can ask your doctor to refer you for a second opinion.
Helen I'm interested in getting a second opinion from a Dr at Mayo in Jacksonville. Would you know a Dr that specializes in endometrial cancer recurrence, and options for treatment?
Yes, yesterday I had a telemedicine appointment with a doctor I was so impressed with (at Mayo, Jacksonville, as I live in FL). He was extremely knowledgeable about women with recurrent endometrial cancer, especially like mine, MMR deficient. He said I was on the right track with my current oncologist, and my immunotherapy treatment, which is why I wanted another opinion, just to make sure. I feel very good going forward. His name for any interested is Gerardo Colon-Otero, MD.
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@afowler876 Is this a procedure recommended by your oncology surgeon for yourself or for a loved one? I’d like to offer my concern for being in the position to make such a huge decision as this.
Here is a video of Dr. Amanika Kumar from Mayo Clinic explaining what pelvic extenteration is and the reasons it is done. Dr. Kumar was my GYNOncology surgeon for a hysterectomy when I was diagnosed with endometrial cancer.
— what is pelvic extenteration
https://medprofvideos.mayoclinic.org/videos/what-is-a-pelvic-exenteration
—Pelvic ententeration
https://www.mayoclinic.org/medical-professionals/obstetrics-gynecology/news/pelvic-exenteration-radical-but-positive-for-carefully-selected-patients-with-pelvic-cancer/mac-20505403
My daughter was diagnosed with stage 3b cervical cancer. Already completed chemo/radiation, she is almost 1 year out. Recent CT shows soft tissue mass, biopsy done, but Dr said he would do hysterectomy it would just be a pelvic exenteration which to me is to agressive since her cancer is localized at this point. Doesnt really agree with a radical hysterectomy due to not being able to get clear margins.
@afowler876 This must be frightening for both you and your daughter. Are you in the U.S.? Is your daughter seeing a doctor in one of the national cancer centers? Would she like another opinion? Mayo Clinic is on this list and there are many others across the country.
—NCI-Designated Cancer Centers
https://www.cancer.gov/research/infrastructure/cancer-centers
Here is the link to request an appointment at Mayo Clinic:
http://mayocl.in/1mtmR63
Does this help?
We are in the U.S, and yes its very frightening as she is only 26yrs old. We arent at one of the national cancer centers and I am considering a second opinion.
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1 Reaction@afowler876 Your daughter is so very young to be facing cervical cancer and such a decision. It’s so good that she has you to advocate for her. I hope your daughter makes an appointment for that second opinion. Will you let me know what she decides and where she will go?
Helen I'm interested in getting a second opinion from a Dr at Mayo in Jacksonville. Would you know a Dr that specializes in endometrial cancer recurrence, and options for treatment?
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Helpful -
Hug
1 Reaction@fowler876:
You may also wish to consult docs at MD Anderson, where they have some innovative radiation treatments, using an MRI linac that has been shown to work very well on certain types of recurring gynaecological cancers. Very tolerable treatment without surgery. If you reach out to them with her records and pathology they can advise whether this would be suitable for her. Best of luck and my best wishes.
PS. You absolutely need to work with an excellent specialized cancer centre rather than your local docs and hospital.
@riverland889 I don't know of any doctors in Jacksonville at Mayo Clinic. If inquiring for myself or a member of my family I would start with my primary care provider or my local oncologist (if I had been treated locally for endometrial cancer) and ask for a referral to Mayo Clinic. That's how I first was seen at Mayo Clinic in Rochester. My gynecologist referred me after I first had the diagnosis of endometrial cancer.
You can self refer at this link. Or as I mentioned above you can ask your doctor to refer you for a second opinion.
Mayo Clinic Appointment Requests:
-- http://mayocl.in/1mtmR63
How are you feeling today? I recall reading and responding to your other posts on the recurrence of endometrial cancer.
@riverland889, were you able to submit a request for a second opinion at Mayo Clinic? How are you doing?
Yes, yesterday I had a telemedicine appointment with a doctor I was so impressed with (at Mayo, Jacksonville, as I live in FL). He was extremely knowledgeable about women with recurrent endometrial cancer, especially like mine, MMR deficient. He said I was on the right track with my current oncologist, and my immunotherapy treatment, which is why I wanted another opinion, just to make sure. I feel very good going forward. His name for any interested is Gerardo Colon-Otero, MD.
-
Like -
Helpful -
Hug
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