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How do you cope with Mixed Connective Tissue Disease (MCTD)?
Autoimmune Diseases | Last Active: 2 days ago | Replies (107)Comment receiving replies
@believe1 and @kleffew, I moved your posts to this discussion:
- How do you cope with Mixed Connective Tissue Disease? https://connect.mayoclinic.org/discussion/mctd-265a2b/
I did this to help connect you with other members living with mixed connective tissue disease (MCTD) like @callieb1102 @gdcm @mctd43years @dee5 @cindia1 @erikab @marye2 @bouregard3 @margar1 and many others.
See all MTCD discussions: https://connect.mayoclinic.org/group/autoimmune-diseases/?search=MCTD#discussion-listview
@believe1, is this a new diagnosis for you? What helps you manage the emotional side of living with MCTD?
Replies to "@believe1 and @kleffew, I moved your posts to this discussion: - How do you cope with..."
Hello everyone feeling and dealing with mctd this is my first connection. I was diagnosed 3 months ago and it had been a huge psychological adjustment. I was always able to do all sports to quite a high level for my age 73. I would place in cross country, biking
and running events . Now I can't it was a big part of my social and fun life. I'm learning to do mobility yoga water aerobics and other things. Luckily I like to swim. Pain management is hard. If anyone has ideas besides euthanasia let me know..just kidding but sometimes I feel that way. I 😘 like having my wits about me but pain is exhausting. I feel for all of us learning to live and enjoy this life and the people we love. I want to stay happy to and care about others.
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In the beginning I would have a little pity party for myself.
You have ups and Downs most days.I do well sometimes m's it's just hard But I'm still here, and I count that as a positive.
Good luck