Just to be clear, if the ANA is positive it will always be positive. Doctors don't seem to care about the actual numbers and say they do not correlate with severity of illness. They don't even test mine anymore.

I did request an ANA reflex panel after years of a systemic lupus diagnosis. It tests for lots of antibodies that can cause the positive ANA. Positive for scleroderma is >1 and high antibodies is >8 and I am >8. Same situation as you. Yes I have GI symptoms, some heart and lung issues, kidney eGFR dropped, arthritis, nystagmus, and the skin on my forearms is tough and bumpy. But no scleroderma diagnosis yet in spite of the high antibody test. I go to an endo now who specializes in it because a general rheumy was not useful.