← Return to ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Discussion

ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Autoimmune Diseases | Last Active: 2 days ago | Replies (42)
Comment receiving replies
@cantek

I am so sorry. This sounds very painful! Has anyone offered an rx for miracle mouth wash for the pain?
Is the weight loss due to pain with eating?
I think the test doesn't come back positive until you are flaring but I agree.
The oral meds are pretty nasty so they don't want to start them if they aren't sure.
Get the mouthwash and work on your microbiome in your gut. Don't eat any processed food and watch carefully for allergic responses.
Did you say you are being tested for allergies?

Jump to this post

Replies to "I am so sorry. This sounds very painful! Has anyone offered an rx for miracle mouth..."
trspac | @trspac | Dec 7 9:56am

@cantek - allergy consult this week with hopes of testing recommended. Have not eaten processed food for months and I am relatively healthy anyway prior to getting stuck with this. Been using OTC products for dry mouth only as advised by rheumatologist. No appetite for food really since everything feels funny in my mouth. Been taking in avocados, beans and sweet potatoes mainly all plain with no seasoning. Mouth is only sore when I grind which is not the main issue right now. Dry like the dessert in my mouth, somewhat in my eyes now but I just keep saline with me since I wear contacts

VIEW AND REPLY
windyshores | @windyshores | Dec 7 9:59am

Just to be clear, if the ANA is positive it will always be positive. Doctors don't seem to care about the actual numbers and say they do not correlate with severity of illness. They don't even test mine anymore.

I did request an ANA reflex panel after years of a systemic lupus diagnosis. It tests for lots of antibodies that can cause the positive ANA. Positive for scleroderma is >1 and high antibodies is >8 and I am >8. Same situation as you. Yes I have GI symptoms, some heart and lung issues, kidney eGFR dropped, arthritis, nystagmus, and the skin on my forearms is tough and bumpy. But no scleroderma diagnosis yet in spite of the high antibody test. I go to an endo now who specializes in it because a general rheumy was not useful.

VIEW AND REPLY