← Return to Cystectomy for muscle‐invasive bladder cancer (MIBC), now Keytruda

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@jowilliams1

That's so encouraging. Thank you. All of the possible side effects of Keytruda have me a bit concerned. I don't want to trade one health problem for another. I see that you have a neobladder. I'm four weeks post op with mine. It's a lot to mentally process. They want me to start immunotherapy in three weeks but mentioned clinical trials as well if I'm interested. My cancer is high grade.

Did you do immunotherapy immediately after your surgery or did they appear to get all of the cancer at that point? I hope you don't mind me asking.

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Replies to "That's so encouraging. Thank you. All of the possible side effects of Keytruda have me a..."

@jowilliams1, I add my welcome. I'm tagging @moose63 to make sure they see your questions.

You may also be interested in these Keytruda related discussions:
- Keytruda (urethral cancer): What's your experience?
https://connect.mayoclinic.org/discussion/keytruda-6/
See all: https://connect.mayoclinic.org/group/bladder-cancer/?search=keytruda&index=discussions

How is recovery going from surgery?

I didn’t have immunotherapy after bladder removal. In hindsight I wish I would have. My cancer returned in some lymph nodes about one year later. I had chemotherapy with two different drugs for four months without any positive results. Went on the immunotherapy(Keytruda) then for two years. Only side effect I have had is dry mouth. Now six months with no sign of the cancer. Probably not cancer free, but my doctor is very opportunistic that the cancer may not show up for one year or longer. Praying that you will become cancer free.