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Still confused about tapering

Polymyalgia Rheumatica (PMR) | Last Active: 1 hour ago | Replies (38)

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@brian326

Like many others I’m figuring it out on my own with the help my rheumatologist. I started on 15 mg, then went to 12.5 mg and then 10 mg, each about two weeks apart. Now I’m reducing 1 mg every two weeks.I had the same problem when I went from 12.5 mg to 10 mg, and had to increase it to 11 mg for a week because I had a lot of pain and stiffness. So far in my experience over the last several months when I lower my dose, I get some pain. It lasts several days, and I would say the pain is sometimes a 4 out of 10. But then it all stabilizes and I spend another 10 days or so at that dose and decrease again. So far it’s going well and the advice for my rheumatologist was she didn’t want me to stay too long at one dose. She is supportive of what I’m doing..

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Replies to "Like many others I’m figuring it out on my own with the help my rheumatologist. I..."

I’m doing very slow tapering: only by .5 change:
7 days old
1 day new
6 days old
2 days new
5 days old
3 days new
4 days old
4 days new
3 days old
5 days new
2 days old
6 days new
1 day old
7 days new
Repeat
I started at 20, no flares so far.
I’m moving right now from 8.5 to 8.
I got this from the Facebook group page for PMR. People who have followed the schedule report great success. I keep a daily log.

That's great since it works for you. I do better at reducing by 0.5 mg every 2-3 weeks. The goal is zero, so however we get there is fantastic! Good luck to us all.

From 10 to 5, I tapered at 1 per month. Below 5 at 0.5 per month. Now at 1.5, no issues to speak of.
Your taper seems a little fast. Most folks reporting issues almost always seem to be tapering the fastest by comparison. Chasing a bouncing ball of prednisone dosages seems to not work very well. Good luck.