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ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up
Autoimmune Diseases | Last Active: Dec 26, 2024 | Replies (46)Comment receiving replies
@trspac I am reading a great book with some very dark humor about experiences similar to what you are having. Very common. But I do think many rheumatologists prescribe a med like Plaquenil based on symptoms. Maybe you could try a different rheumatologist. I see one who specializes in scleroderma. Maybe a Sjogren's clinic?
I get tired of being tossed around between doctors the way you are right now. I have bursts of trying and then I give up for a year or two. Hope you get a doctor to listen but ENT doesn't sound right for you.
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@windyshores - I agree 100% that ENT is not the answer but trying to get my foot in the door and trying to be open minded and agree to the referral from the rheumatologist. Heck, they are the specialists so one would think they know best. Maybe I will get an ENT like my first one who knows better and provides me with the necessary direction. Just seems like if I clinically have symptoms with an ANA that high a rheumatologist would not just come to the conclusion of glossitis unknown etiology with atypical symptoms. So frustrating. I will take Sjogren’s clinic into consideration. Likely will end up with a university rheumatologist or Mayo Clinic. I try to be hopeful but I have my days. I will continue to push myself until I am no longer in control of course. Just know the odds of a ANA being that elevated with symptoms are not in my favor. Being tossed around like this makes me feel as if these docs don’t really care about me. Book name?