← Return to "Parenting" a 23YO daughter with grand mal seizures

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@santosha

Continuing Heather...
As @jakedduck1 has well shared seizures can change in type, frequency, and severity throughout life. I have had auras and focal impaired awareness seizures since I was a teenager, but they did not affect me much. I was absent for a few seconds and "came back" as if nothing had happened. I went to university, did my master's, worked, and had a normal life. But this started to change in my forties, seizures became stronger and more frequent. Focal impaired awareness seizures became more frequent and I took a while to "come back", until my epilepsy had clearly shown its face.
Regarding watches, I have read that are today watches that can detect tonic-clonic seizures. I do not use them, as my seizures are mostly focal ones and not detected by those watches. Perhaps others here in our group can share their experiences with you? What I have been considering is to have a seizure dog one of these days when I move into a house. I have read that a well-trained seizure dog, can sense and alert a seizure coming before it happens. However, I use a smartwatch that measures my sleep, stress levels, etc, helping me to manage better my seizure triggers. As @jakedduck1, I also use an ID bracelet, it gives me a feeling of some security.

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Replies to "Continuing Heather... As @jakedduck1 has well shared seizures can change in type, frequency, and severity throughout..."

I like the idea of being more aware of triggers by monitoring vitals and habits. I keep telling her to keep a journal (it could be in the notes section of her phone) to record the context of each seizure, what type it was, and how long it lasted so she can develop some sense of what triggers them. I think when someone is that depressed, they just don't have the energy to put towards such things because they are just surviving. It is hard to watch.

I love the idea of a dog! If I could have a service dog, I would be pursuing it immediately myself. She thinks it would be embarrassing to need a dog but she loves animals and I think a constant companion you are allowed to take anywhere would be amazing!