← Return to "Parenting" a 23YO daughter with grand mal seizures

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@santosha

Hi @adoptivemother
I am very sorry to hear what you have been through with your daughter.
@jakedduck1 has a long experience with epilepsy and has much to share with all of us. I am happy he has already answered you :-):-).
Accepting one's epilepsy can be something quite challenging. I was diagnosed with epilepsy in 2019 at 48 years of age (though I have lived with it since my teenage time without knowing it). Accepting my epilepsy: giving up my job, changing my routine, undergoing treatments with lots of side-effects, etc was a big challenge I would not have won without the support of my neuropsychologist. I was the turning key to being able to restart my life and smile again. My neuropsychologist has also given support to my husband, which has also been extremely helpful. From your post, I feel your daughter has not yet fully accepted her epilepsy. Have you and/or her doctor considered the support from a psychologist or neuropsychologist to help her in this phase?

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Replies to "Hi @adoptivemother I am very sorry to hear what you have been through with your daughter...."

Thank you for your response. I did not know about the field of neuropsychology! I totally agree that she has not accepted living with epilepsy. Deny and avoid! She does have a therapist and she went through an IOP mental health program after the most recent trauma but none of that was focused on living with epilepsy. I wonder if Mayo will be able to connect us to a neuropsychologist when we go there or if I will need to find one from home. We live in the wilderness 🙂 so it would be virtual anyhow.

Heather