← Return to ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

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@trspac

@cantek - I reached out to Mayo clinic yesterday. No one should have to wait for a flare to be given the diagnosis if clinically they are presenting with all the dryness. Rheumatology referred me back to ENT at a University hospital so I am willing to go just to get my foot in the door. Thanks for sharing your story. It gives me hope for future appropriate treatment. The dryness of my mouth is causing so many other issues with my oral health and rapid weight loss. My rheumatologist let me know he did not know what was wrong with me and my chart noted atypical symptoms. All this because the stress of all this has caused me to grind my teeth at night thus leading to tongue and cheek swelling with tongue sores because my teeth irritate the tongue leading to my diagnosis of glossitis unknown etiology with an ANA of 1:1280, wow just wow. I am my own advocate so will continue to fight for myself through this crazy process

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Replies to "@cantek - I reached out to Mayo clinic yesterday. No one should have to wait for..."

I am so sorry. This sounds very painful! Has anyone offered an rx for miracle mouth wash for the pain?
Is the weight loss due to pain with eating?
I think the test doesn't come back positive until you are flaring but I agree.
The oral meds are pretty nasty so they don't want to start them if they aren't sure.
Get the mouthwash and work on your microbiome in your gut. Don't eat any processed food and watch carefully for allergic responses.
Did you say you are being tested for allergies?

Get to Mayo. They employ the top MD’s in the country. Best care I have ever had and Im an RN.