Connect
← Return to ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up
Discussion
ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up
Autoimmune Diseases | Last Active: 2 days ago | Replies (42)Comment receiving replies
I have Sjogrens and it took numerous tests to catch a flare. My eyes went dry first, had to stop wearing contacts. I was referred to a Rheumatologist and he said I was “ borderline”. Then diagnosed with Antisynthetase Syndrome, still not a pisitive foe Sjogrens but my mouth was always dry.
Finally about two years into treatment I tested positive. I knew I had it but the tests are fickle.
Im now on IV Rituximab every 6 months with no dryness or symptoms unless I take Zyrtec for allergies then dry as a bone.
Mayo is your best bet or a reputable University Hospital with good rating for Rheumatology. I am moving most of my care to Mayo, pretty outstanding care, this coming from an RN.
Replies to "I have Sjogrens and it took numerous tests to catch a flare. My eyes went dry..."
Connect
@cantek - I reached out to Mayo clinic yesterday. No one should have to wait for a flare to be given the diagnosis if clinically they are presenting with all the dryness. Rheumatology referred me back to ENT at a University hospital so I am willing to go just to get my foot in the door. Thanks for sharing your story. It gives me hope for future appropriate treatment. The dryness of my mouth is causing so many other issues with my oral health and rapid weight loss. My rheumatologist let me know he did not know what was wrong with me and my chart noted atypical symptoms. All this because the stress of all this has caused me to grind my teeth at night thus leading to tongue and cheek swelling with tongue sores because my teeth irritate the tongue leading to my diagnosis of glossitis unknown etiology with an ANA of 1:1280, wow just wow. I am my own advocate so will continue to fight for myself through this crazy process