Hi Nancy
I was prescribed calcitrol,(Rocaltrol) by my endocrinologist and I took it for approx 10 years along with high doses of calcium. I don’t believe I experienced any ill effects from it and I had a huge respect for my endocrinologist. He was very well versed. I also had the parathyroid glands auto transplanted into my mastoid muscle.
Not sure if any of this helps but please feel free to reach out. Things will improve going forward and although I realize it’s a real “hit” in so many ways, it will improve. 💕
Also after your post I googled and found an interesting site, it is in the UK but may answer questions for you too.
parathyroid’s.org