I had Non-Hodgkin Lymphoma and was treated with radiation. Yes, it was a 'walk in the park' compared to this post COVID stuff. Depression is present often - I try to work through it. Like others I've seen so many docs - more than combined in my 77.5 years of life!

Today is a very bad day. My hearing, which was fine til I got COVID the end of March/start of April 2023 and seems to worsen with time; the other symptoms (leg rash that persists, mouth 'blisters', tinnitus and musical hallucinations about which a non-ENT told me they were called; the ENT didn't; exhaustion) all seem to be at a "let's make her crazy" pitch today. I'm trying to work - yes, I still try to! - and finding today a challenge.

I read all I can by using a google alert for "long COVID" and it's still a mystery. All I've seen that's positive so far is that young people seem to have lessened or no long COVID after 2 years. I so hope for them it's that.

Where are the doctors in more than at Mayo who care to know more? I went to the one "long COVID specialist" in the major metropolitan area in which I lived that is also affiliated w/ a teaching hospital. He made a decision about me and took only one symptom into consideration and then checked out of involvement with me.

So here we are trying to help each other when what an opportunity those who do research have!

To us .. to Quality of Life -- even for a few hours.

JE