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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 4 hours ago | Replies (414)

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@gldburg92jeep

Thank you so very much. I am in the same situation. Neurologist , nureosurgeons , pain management, psychiatrist phycologist, I'm not asking for a cure but a better quality of life. I live in VA and the cold is extreme right now. I woke up warm from my bed only to stand up in severe pain , I'm not good with walker but I have refused the wheelchair so far. I have tried to make my home safe for me to walk thru and also take care of my little dog. She's alot of comfort when she's not barking. Lol. I enjoy looking outside to see deer and other wildlife. Where are you located ?
If you don't mind me asking.

I believe the last spinal tap after a car accident which was a hit from behind type went really bad even though I was having symptoms before then. But Dr who was doing the spinal tap said the contrast is pooling in one spot and will not go any further I'm afraid if I inject anymore it will blow out . I came home needless to say that the contrast did not leave my body thru my kidneys liver etc it accessed and came out thru my skin.

I've just continued to get worse.
I pray God gives me the patience to recieve some relief and answers.

I want to enjoy my life , have a little better quality of life , be able to socialize w my family who are mainly all I have. When this started I haven't drank in over 11 years and I'm no socialite .... I use to love to get out and drive in the woods and enjoy my life.

If you don't mind , we can talk , sometimes it hard for me to share , but my dog barks also , I'd like to know or hear of your surgeries etc. I had cancer my senior year of high school and had radiation treatments after from my thoracic spine , then I had to learn to walk again.
I guess I've typed enough for now. Thank you for reaching out. I'm praying for you also.

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Replies to "Thank you so very much. I am in the same situation. Neurologist , nureosurgeons , pain..."

So sorry, but, i too, have gone everywhere, reached to every type of specialist. Being a former RN, i can speak the lingo, but no one interested. Do U have Dr Forrest Tennant's handouts?? he is the foremost expert in the field. Goggle Arachnoiditis Hope. He has also published a book on the topic ( available on Amazon) please email me, if U can't find it) Every day, it's a new symptom. I already have a permanent suprapubic catheter, from being paralyzed from MRSA. Was paralyzed from the neck down & in hospital & rehab for 15 months. Lost all my savings etc. Now i have bowel incontinence, some of the time. Have no more feeling in entire area This new symptom, is too much!! so afraid, i will end up back in a wheelchair. That's why i exercise, whenever i can. Please email, when ever u need to laurenseavertson@q.com

email me any time. Have been suffering from this condition for 25 years. Don't want to repeat myself, but i have almost every single symptom & more..... Now bowel incontinence, as well as permanent suprapubic catheter for neurogenic bladder (from paralysis from MRSA) Now praying i don't end up back in a wheelchair. My email laurenseavertson@q.com