← Return to Arachnoiditis: Looking to talk with others
DiscussionArachnoiditis: Looking to talk with others
Spine Health | Last Active: Mar 11 12:58pm | Replies (458)Comment receiving replies
Replies to "Thank you so very much. I am in the same situation. Neurologist , nureosurgeons , pain..."
email me any time. Have been suffering from this condition for 25 years. Don't want to repeat myself, but i have almost every single symptom & more..... Now bowel incontinence, as well as permanent suprapubic catheter for neurogenic bladder (from paralysis from MRSA) Now praying i don't end up back in a wheelchair. My email laurenseavertson@q.com
Hi, I'm in VA too, in the Roanoke area. Where are you located? My lumbar mri from last Nov said "mild enhancement of nerve root at cauda equina, suggestive of arachnoiditis". So, haven't officially been dx, but am feeling the symptoms. How are you doing? I hope you're doing well, being new to all this I'm trying to learn as much as I can but having trouble coming to grips with it all 🙁
So sorry, but, i too, have gone everywhere, reached to every type of specialist. Being a former RN, i can speak the lingo, but no one interested. Do U have Dr Forrest Tennant's handouts?? he is the foremost expert in the field. Goggle Arachnoiditis Hope. He has also published a book on the topic ( available on Amazon) please email me, if U can't find it) Every day, it's a new symptom. I already have a permanent suprapubic catheter, from being paralyzed from MRSA. Was paralyzed from the neck down & in hospital & rehab for 15 months. Lost all my savings etc. Now i have bowel incontinence, some of the time. Have no more feeling in entire area This new symptom, is too much!! so afraid, i will end up back in a wheelchair. That's why i exercise, whenever i can. Please email, when ever u need to laurenseavertson@q.com