God bless you and also I found out thru MRI in my L4L5 S1.

Hi @gldburg92jeep ,
I am so sorry that you are experiencing so much pain and daily movement limitations and challenges. I sincerely wish that there was a doctor or medical facility that I could recommend to you - but like you, I have searched all over ( and still do) to various neurosurgeons, neurologists, pain management doctors, orthopedic surgeons, Orthopedic physicians, well known medical facilities throughout the United States, alternative medical treatment, various well known rehab facilities, etc. My experience, for the most part is that everyone tries to help, but since Arachnoiditis / Adhesive Arachnoiditis cases are not numerous throughout the U.S. nor throughout the World- there is little research done my the medical field, and/or the pharmaceutical field in the treatment of Arachnoiditis/Adhesive Arachnoiditis. The only suggestions that I can make, is what I also do for myself. Namely, keep reaching out to various medical facilities to see "IF' there is any new research being explored, and any helpful suggestions they may have. They no doubt will need to see you, to evaluate you particular situation and have access to your medical records to see diagnosed issues. and tests that were done to support those diagnosed, issues. Also your medical records re: operations you've received for these issues - if any... What I feel is within my control
( since so much is not in my control) is how I try to approach and embrace each day. I try to keep a frame of mind and spirit of gratitude for all of the blessings in my life. People, nature, a safe home to live on, food to nourish me, distractions that I enjoy such as talking with family, friends, neighbors, and even a brief /passing interaction with a relative stranger. I am thankful for music that I enjoy listening to, TV programs I like, reading, some game shows on TV that keep my mind engaged, my spiritual faith, and so much in nature that I can see from my living room window. There is so much more in any given day that I am also thankful for. I just have to have eyes to see, listening ears and a listening and grateful heart. Sometimes doing this is a challenge, but I give my acknowledgment to the difficulties, in so many areas of my life - but I try to move past them in my spirit and my mind and not let those very hard areas of my life be all consuming. Not always easy to do... but I try and often succeed thankfully. I hope that you can also find the place in your mind, body and spirit that will allow you to have the same ability to find so much to be grateful for. You are in my prayers.
With peace-filled wishes,
mata