← Return to ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Discussion
Comment receiving replies
@trspac

He was considering Sjogrens but due to the negative workup that is no longer being considered. I don't care about a diagnosis either, what I do care about is treatment. Because I don't complain much rheum just keeps the label of glossitis unknown etiology. Took pilocarpine first day this morning. Because I work in the media field he was gracious enough to at least try and give my dry mouth some relief. Fatigue, tmj severe pain still an issue along with muscle aches but I am strong and will push through it. Just hope pilocarpine helps my mouth at the very least. I have a f/u in 4 weeks. Lab work up without an obvious cause of an autoimmune condition leaves me without the ability to be treated I guess until I get worse than I have been and it has already taken away from my quality of life.

Jump to this post


Replies to "He was considering Sjogrens but due to the negative workup that is no longer being considered...."

The thing is @trspac what treatment would you feel is tolerable? Plaquenil tends to be tolerable but steroids are awful and various other immune suppressants bring risks and side effects. That is why I don't pursue treatment. If my kidneys start failing I will be more aggressive. It sounds like you are suffering more than I am!