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Discussion"Parenting" a 23YO daughter with grand mal seizures
Epilepsy & Seizures | Last Active: 15 hours ago | Replies (24)Comment receiving replies
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@adoptivemother
Yes, I drive. I have had a couple of incidents while driving. I had a few absence seizures that happened while stopped at red lights. My foot came off the brake and I barely tapped the car in front of me. No damage. Once I turned left leaving the dentist's office, had an absence, and nearly hit a car. Went directly to my neurologist and he increased one of my meds and solved the problem, at least so far.
But you never know when, what type, or the severity of a seizure. My brother's first seizure happened while driving to a garden store in a small sports car and he hit head-on with a station wagon. He crushed both his legs and severed his femoral arteries in both legs. He's now in a wheelchair. So anything can happen to anyone at any time, epilepsy or not.
I know many people with seizures and those who take some risks seem to be happier. I have known some who live very sheltered lives a couple who refuse to ever leave their homes. One is ashamed and embarrassed and doesn't want anyone to see him have a seizure.
People are still ignorant and the Epilepsy stigma is going strong but better than it was in the 60s, 70s & 80si but you have to be strong and let cruel comments roll off your back. Sure it still hurts being told “you belong in a circus” or having religious people saying you're “possessed by the devil” or “your the devil” and wanting you to come to a séance and countless other awful things, not being hired or fired because of seizures. Yes, it's illegal but don't think it doesn't happen. Sometimes you just have to deal with whatever hand life deals you, difficult as it may be.
Take care,
Jake
Insurance companies in terms of cost aka greed have unimaginable power. I have had a medicare advantage plan. On 1/1/25 I will be in origional medicare. I paid for my own prescriptions because they have denied to send me my medications including my anti epileptic drug..Take all precautions necessary. They no longer care.