← Return to Multiple Sclerosis (MS) - please introduce yourself

Discussion
Comment receiving replies
@hopeful33250

Hello @kennywood,

Congratulations on getting a call back from Mayo. It will be a good thing to be seen by a multi-disciplinary medical center like Mayo. From others who have reported appointments at Mayo, my impression is that each department consults with others so that you get the benefit of many different medical teams. As Lisa, @lisalucier, asked I'm assuming that you posted in the MS discussion group since your doctor has mentioned the possibility of an MS diagnosis. Is that the case?

Neurological disorders can be very difficult to diagnose because so many of the symptoms overlap. Over 20 years ago, I began with neurological symptoms (foot-dragging, balance problems, general weakness on the right-side extremities). The first neurologist I saw suggested it was early stages MS and the second said it was probably early stages Parkinson's and a third doctor said that they might not know for sure until the symptoms got worse. I finally did get a diagnosis around 15 years after the symptoms began to get worse and resulted in falls.

I know how confusing it is to wait for a diagnosis when the symptoms are so bothersome, but I'm looking forward to hearing from you again after your visit to Mayo.

If you are comfortable doing so, would you like to share your current symptoms? I'm thinking of things like balance problems, gait difficulties, freezing in place when you walk, vision problems, etc.

Jump to this post


Replies to "Hello @kennywood, Congratulations on getting a call back from Mayo. It will be a good thing..."

I, also waited 15 yrs for a diagnosis. I was under the care of a D.O. While all my symptoms became serious. She told me there was nothing wrong with me. All the falls and injuries from shocks leading to temporary paralysis.
She refused to refer me to a neurologist.
It turned out I had to have two more surgeries and now am looking at shoulder surgery and possibly hip. I’m now bedridden hoping for N appointment