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I agree with you about the urology department. The week before I got my Decipher test results, I had a video meeting with the urologist, and he recommended I have Tulsa Pro Therapy. Since the radiologist ordered the Decipher Test I don't know if the urologist will see it. If he does I wonder if it would change his recommendation. He said he would ablate 1/3 of my prostate. He said Tulsa Pro is not FDA approved (wrong), that medicare will only partially pay for the procedure (I think wrong), that I would not be able to have surgery if the cancer returns (wrong), and that I would need to have an MRI every 6 months and a biopsy every year after Tulsa Pro (I think wrong).
I have not seen any discussion on how the decipher score impacts the decision to have Tulsa Pro, but it seems like leaving 2/3 of my prostate intact with a .9 decipher score is a bad idea.
Replies to "I agree with you about the urology department. The week before I got my Decipher test..."
Correctamundo!! I don’t know why any doctor would leave ANY prostate tissue IN with that kind of decipher score. Get away from this a**hole pronto!
Look, Mayo is a great system but even great systems have clunkers in them. When I went to Sloan I was seen by the senior attending RO. He gave me a Prostate exam - I had it removed 5 yrs before - and almost killed me….I literally screamed - and he laughed and told me that I would need 39 sessions of radiation. A year later after many PSA’s I returned to start treatment and was seen by a new doctor.
“Where’s Dr F***face,” I asked. “Oh, he’s gone…thank God! But you didn’t hear that from me!”
“I didn’t care for him,” I said…
“No,” he replied, “not too many people did…”
And I then got 25 treatments - the newest research indicating it’s on a par with 39 and less time needed. So even the BEST of the best hospitals have losers on staff. You wouldn’t let an inept car mechanic work on your car - don’t let an inept physician treat your body!!
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@hoover58
I did not have the procedure you are mentioning. But that is a lot of wrong that you are finding with your urologist.
When I got my prostate diagnosis and met with my Mayo R/O the treatment was photon 20 rounds with hormone treatment. I got the Decipher and it came back low risk versus the biopsy stating medium risk. So the need for hormone treatment was removed.
Another poster mentioned still getting it as it still can determine the aggressiveness of it. It is something to discuss with your urologist or whom ever is going to do your treaments.
Good luck!!!