Day 106 post allogenic transplant for my beloved husband. It’s been quite a ride. His transplant was at Mayo Rochester. We lived in a nice little apartment in Rochester for four and a half months for the process. We were released last week and came home to our precious house in the Northwoods of Wisconsin, 200 miles from Rochester and our first trip home since pretransplant testing started back in July.
David needs five more cycles of “maintenance chemo” to try to ensure his high risk MDS does not recur. His blood counts are all still low because of that.
But we are both so happy, overwhelmed with joy to be back at home. Every day is a gift and a wonder.
He will begin today to get follow up care at our local cancer center with additional trips back to Mayo for tests and clinic visits as needed.
So it’s still a lot, but as yet we have not seen any GVHD symptoms. Watching for that, managing the interface between the medical entities and grimly seeing the bills left after insurance coverage come in, but we are together, closer than ever and so grateful for this opportunity to live and love.