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Hello,
I'm newly diagnosed.. Endometrioid Grade 1 (Just via biopsy thus far). Vaginal ultrasound early November mentioned no Myometirum mass seen. Of course all this may change after surgery and pathology comes back with stage.
Meeting with Oncology Surgeon Monday for my first meeting to go over things and to schedule Hysterectomy.. hopefully in a couple weeks.
I'm keeping positive thoughts that after surgery (when I get the actual stageing will be Stage 1a Grade 1.
I'm trying to be pro-active as much as I can. I have noticed that even the lowest type, grade and stage seems to have quite a bit of recurrences. I'm not sure how well I believe the stats online for survival and recurrence rate.. as they seem pretty low for recurrence but I see so many posts in various forums and support groups where it may not be so infrequent.
Anyrate.. It it pretty common to for vaginal Cuff recurrence to be the most frequent recurrence with low grade low stage?
A lot of the times when low grade/type and stage from what I have noticed they do the surgery and say "we got it all" and then send you on your way without any additional treatments. And then your monitored every 3 months for a few years or more seems.
Question I have do you think Vaginal cuff brachytherapy right after surgery would help lesson the chance of recurrence in the vaginal cuff or NO? I read mixed reports after testing being done for stats if it helps or not online from all different research places. Some say yes and some say it doesn't seem to matter one way or another. What's your thoughts as actual patients that have or are still going through this.
Also if recurrence does happen in Vaginal cuff and nowhere else ... can that be easily treated or does it keep coming back and back over and over or does it eventually stop recurring? Trust me I would rather have a recurrence happen there if it was going to happen instead of a distance organ somewhere else in my body. I know recurrence can happen anywhere but stats do say Vaginal cuff is the most common.
Thank you.
Replies to "Hello, I'm newly diagnosed.. Endometrioid Grade 1 (Just via biopsy thus far). Vaginal ultrasound early November..."
I haven’t read @naturegirl5, Helen’s, response yet, (and think of that as the cavalry showing up) but want to say that you really seem to have your head on straight around all of this, @idaho1960. You’ve done excellent research at a time when my head was just spinning and you’re asking great questions. I hope your outcomes reflect your readiness to take this on.
Now I’ll set this aside and come back later when I can listen to and take in Helen’s response.
With a hug and best wishes,
Gynosaur
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@idaho1960. I just posted a message to you on another discussion and asked how we can can support you. I also asked about your diagnosis which you have kindly expanded upon here. It sounds like your treatment plans are moving quickly and that's good.
You raise some very good questions. My diagnosis was adenocarcinoma, endometroid type FIGO Grade 1. Same as you. I did have a recurrence that was found in the vaginal cuff. It was two years and a few months after the radical hysterectomy. I had a PET/MR scan after the recurrence was found in the vaginal cuff and those scans showed no evidence of disease.
My surgeon told me after the hysterectomy that I would return every 6 months for physical pelvic exams but no CT scans. She said that the majority of recurrences are found on the vaginal cuff. It was during one of those exams that the recurrence was found on the vaginal cuff. After many discussions (I had external pelvic radiation and 2 treatments of brachytherapy) I figured that maybe something was "missed" in pathology in the cervix. After all, pathology takes a sampling of tissue and cannot examine every single piece of tissue that is removed. Maybe there needs to be a change in protocol where more of the cervix is examined? And what would have happened had I had the radiation therapy after I was healed from the hysterectomy? I was staged 1a after the hysterectomy which means no other treatment was recommended at that time.
So you do raise some really good questions. Would you like to write these questions down and ask your oncology surgeon? And then come back here and let me know what your surgeon says?