@adoptivemother
I’m sorry to hear of your daughter's seizures.
I’ve had epilepsy for 58 years and have had thousands of seizures.
Your daughter needs medical identification because of the unpredictability of seizures.
I have belonged to the MedicAlert Foundation for nearly 60 years.
https://www.medicalert.org/
I like MedicAlert because they have a database where members can store medical records/legal documents and call family/friends when necessary.
Many people with epilepsy, especially when young people engage in risky behavior. I certainly did and now I shudder to think of the foolish things I did.
I decided early on that I was going to live as normal a life as possible but I didn't make the best choices. Although I have lived alone since 2019 after my mom passed. I recently got a roommate and feel safer since I was found unconscious in my living room last May by friends. Seizures usually resolve on their own and don't normally need emergency medical intervention unless they last longer than 5 minutes (Status Epilepticus, when seizures don't stop on their own) or are unusually severe, or have breathing difficulties or injuries.
What seizure meds does she take?
I have only had one Aura (which is a Focal Aware seizure.)
Just because she's always had auras doesn't mean she always will. Seizures can change in type, frequency, and severity. I had absence, focal awareness, focal impaired, tonic-clonic, and convulsive Status seizures.
I had intractable epilepsy for 45 years but my last Neurologist changed my medication to a time-released formulation and it controlled my seizures.
It is recommended if she takes generic medicine to always get refills from the same manufacturer. You also might consider an anti-suffocation pillow since her seizures are so frequent which increases the risk of S.U.D.E.P. (Sudden Unexpected Death in Epilepsy.) Fortunately, this is rare. Perhaps she needs to see a counselor or psychologist to help with the suicidal ideations.
She may also want to consider a seizure monitor for her bed, just another precaution.
Best of luck to you all,
Jake
The photos below are of my MedicAlert seatbelt ID holder and my ID on my watch band.