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Immunotherapy Scheduling

Cancer | Last Active: 4 days ago | Replies (13)

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@dbamos1945

Be persistent in medical matters. YOU need to be the best advocate for your BEST health outcome! You should be able to contact your Dr and his/her team on the portal by leaving a message regarding “Missing Order” and asking for a prompt response!
It sounds like someone did not follow-through in their responsibilities. When you see the order I would review it to verify that it mimics what your Dr told you! I have found errors in my orders and had them corrected prior to procedure. YOU should be the Drs priority! Be strong!

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Replies to "Be persistent in medical matters. YOU need to be the best advocate for your BEST health..."

Totally agree! As a former nurse (retired) I learned the importance of reviewing my medical records for accuracy. I've come across those that have reported me as being a smoker (I am not), identifying the wrong hip as having been fractured, stating I did not have Epstein Barr when in fact both titers were positive, adding 20 lbs to my weight, etc.

In this case, being new to Mayo and the process I wasn't clear on the procedure but it turned out persistence did pay off -I got a call yesterday scheduling my labs, appointments and infusions through February so I'm all set.

@dbamos1945 So very true. My oncology team set up my infusion programme with the infusion centre, and I always had an advance programme. Now that I’ve finished treatment I’m doing quarterly surveillance scanning. I often have to chase up my oncologist’s admin team to sort out the scans with the provider. The provider can’t book me in until they get the paperwork from my oncologist’s office. It’s very annoying how often the admin team drop the ball. I’ve learnt not to think they’ve got it in hand, and now assume they don’t!! I chase. It’s my life at risk.