← Return to Immunotherapy Scheduling
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Cancer | Last Active: 4 days ago | Replies (13)
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Replies to "Be persistent in medical matters. YOU need to be the best advocate for your BEST health..."
@dbamos1945 So very true. My oncology team set up my infusion programme with the infusion centre, and I always had an advance programme. Now that I’ve finished treatment I’m doing quarterly surveillance scanning. I often have to chase up my oncologist’s admin team to sort out the scans with the provider. The provider can’t book me in until they get the paperwork from my oncologist’s office. It’s very annoying how often the admin team drop the ball. I’ve learnt not to think they’ve got it in hand, and now assume they don’t!! I chase. It’s my life at risk.
Totally agree! As a former nurse (retired) I learned the importance of reviewing my medical records for accuracy. I've come across those that have reported me as being a smoker (I am not), identifying the wrong hip as having been fractured, stating I did not have Epstein Barr when in fact both titers were positive, adding 20 lbs to my weight, etc.
In this case, being new to Mayo and the process I wasn't clear on the procedure but it turned out persistence did pay off -I got a call yesterday scheduling my labs, appointments and infusions through February so I'm all set.