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Multiple Sclerosis (MS) - please introduce yourself
Brain & Nervous System | Last Active: Apr 9, 2024 | Replies (326)Comment receiving replies
@bumble81 - thanks for the update on the testing you've been undergoing. Glad you are getting some answers, though it sounds as if you feel some symptoms you have had have not yet been accounted for in a diagnosis?
Your MRI, evoked potentials (I believe the same as described here https://newsnetwork.mayoclinic.org/discussion/contact-heat-evoked-potential-stimulation-cheps/), and a video nystagmography (VNG) are still to come, correct?
@legalese1972 - sounds like you've found nutrition can really make an impact on your symptoms. What does your doctor say about the fatigue that you've been experiencing?
Replies to "@bumble81 - thanks for the update on the testing you've been undergoing. Glad you are getting..."
My PCP recommended I see my neurologist in regards to my fatigue. They tried the CPAP and it made it worse where I was falling asleep during the day. My appointment with my neurologist is at the end of August.
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It's just been frustrating is all. It has been 5 years since this neurologist found lesions on my brain and lots of different tests have been run. Now I have an addition lesion and I worry irreversible damage is being done.