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Multiple Sclerosis (MS) - please introduce yourself

Brain & Nervous System | Last Active: Apr 9 9:54am | Replies (326)
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@lisalucier

Many of you have shared some of your story here with multiple sclerosis (MS). I wanted to check in and see how things are going, and thought your responses would be beneficial to all the members in this discussion.

@srountree3006 - did you get the MRI you were hoping for?

@legalese1972 - how are your symptoms? Are you still feeling as though you are just trying to survive?

@bumble81 - were you able to get back to your old neurologist's office to see if they will order the MRI's and investigate the increased protein in your spinal fluid?

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Replies to "Many of you have shared some of your story here with multiple sclerosis (MS). I wanted..."
bumble81 | @bumble81 | Jul 3, 2019

I got into my old neurologist office. She says at this time that my MS panel is negative and they do not diagnose without having oligoclonal bands.
She did not seem concerned about the increased CSF protein since it was just 13 points above normal. I guess we just ignore the increase in brain lesions?

She wanted to rule out some things. I think lupus was one. And so far all of the blood work is negative.

I also have a cervical MRI, Evoked Potentials, and a VNG scheduled.

Doctor offered me gabapentin for my muscle fasciculations but I declined as I did not want to take something that was hard to stop taking.

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