← Return to Evenity worked for me: Why I chose medication for osteoporosis

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@jennirdh

More details that might help further outline what happened to me, probably the most striking is the CTX number, from 10/23 to 9/24 it went from 79 to 613! That was a year off Prolia ( last injection 4/23 and started ibandronate 150 mg in October 2023. Monthly dose. Dexa 10/23 still showed osteopenia, but not worse. So somehow in the span of 8-9 months I had a huge loss. Next dexa is this Monday, and I’m having an Echolight (ultrasound) done in January, which I want to do and will pay out of pocket for. I had no other changes to meds or anything in that time, in fact was exercising more than I had in years. I do have a family history of osteoporosis, my mother developed it early due to early menopause ( she had no HRT either) and had had several fractures before she passed away. So I am praying that Tymlos helps me and gives me time to research what to do after that. I need a new endocrinologist badly, it’s so hard to find one that specializes in osteoporosis!
As far as the Tymlos goes, ppl on this site have helped me by saying they take their shot in the morning (which is TERRIFIC for me) and I got up to the full 8 clicks within 5 weeks. No problem doing it in the mornings, I get busy and don’t notice if my heart beat is a little faster for a while.

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Replies to "More details that might help further outline what happened to me, probably the most striking is..."

@jennirdh Again so sorry all that happened. The medical world needs to get on top of this. It shouldn't be happening. With your ctx going up that much and with ibandronate being the med you were given the fractures you experienced are not surprising.

As best I can remember and verify in a few minutes of searching ibandronate is pretty similar in power to alendronate. Both are not safe bets for transitioning off of Prolia.
If your ctx had been tracked monthly and you had seen your ctx skyrocket you could have switched to Reclast immediately. That might have prevented your fractures. But there is perhaps no point in using anything other than Reclast to follow Prolia if you have been on Prolia for more than 1-2 injections? And still with Reclast I think we should be doing monthly ctx tests to see if it is stopping the Prolia rebound.