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Options if MAC goes untreated

MAC & Bronchiectasis | Last Active: Dec 15, 2024 | Replies (96)

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@sueinmn

For those wit Bronchiectasis, one of the pillars of disease management is daily airway clearance, which can be done many different ways. This is to keep the lungs clear of mucus, where germs hide. Would you please describe your self-care routine? Do you do daily airway clearance? Are you seeing a pulmonologist?

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Replies to "For those wit Bronchiectasis, one of the pillars of disease management is daily airway clearance, which..."

Hi Sue -
I hope all is well with you. I was wondering if you had thoughts about the question I posted a couple of days ago after my follow up regarding my twice-daily practice of nebulizing with 7% saline. I value your feedback if you have a moment. I’ve attached a chart showing the roller coaster of results. Thank you so much for all you do on this platform for all of us! -Jill

Hi Sue, @sueinmn Thanks for the response and tips from others as well. I do use postural drainage, breathing techniques and will restart Aerobika. Airway clearance is most important I was told, and I eat healthy meals and snacks and try to keep up my BMI. I often wear masks in crowded places, use nasal irrigation to help with occasional sinus issues and after being out in crowds. Exercise too but I could do more at times. I will use NAC once in the mornings now since twice a day might have lowered my diastolic pressure. Trying to figure that out.

Fortunately I don’t have MAC or cavities to treat at this point, and was told that my BE is mild despite the coloured mucus that must be cleared each day. BE can leave me feeling fatigued at times. I pace myself if that is the case.

I guess the cilia in my lobes / lungs were destroyed or partially destroyed by infections but the specialist says I only have mild Bronchiectasis.

I’m fortunate that my lung function etc is normal. I’ve read about the various scales that are used to assess severity of BE. I have mild BE now, but with age and possible infections over the years, that could change? That’s why I’m adamant about doing the airway clearance each day. I was told it can potentially help clear infections.

Nebulizing with saline is not something that has been recommended to me, although I have a lot of mucus to expel, but no asthma or other health challenges at present. I’m grateful for that.

I was wondering if nebbing might be something to consider to help avoid MAC or are there some risks to it at this stage for anyone without MAC? Thanks again. I welcome the suggestions or tips.