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@blm1007blm1007

First your statement of "not sure if they were the “Big 3”. My understanding and if you listen to doctor Daily's, of NJH, video regarding when to treat or not treat the big three are Azithromycin, Ethambutol and Rifampin, Not sure if the ones you mentioned also go by another name but are either the same or similar in terms of what they have in them. with regard to the ones you mentioned being prescribed for you. It might help if you could have the pulmonologist tell you the differences and why one over another so that you could understand the difference and the why of one over another.????
Also, do you get to see what National Jewish is telling your pulmonologist to use and do? I take it you had much testing at National Jewish and have a lead doctor there communicating with your local pulmonologist doctor. You might be able to message your lead doctor at NJH for confirmation if you feel that would help and to also answer some of your questions and as well to be sure they know all medications that have been suggested for you to take for all your health problems and reasons for being on them since they are working with your local pulmonologist...It might help with full communication ???? Glad you knew to have baseline tests before starting the antibiotics. Hope my sharing of my two cents worth of thoughts is comfortable for you.
Barbara

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Replies to "First your statement of "not sure if they were the “Big 3”. My understanding and if..."

Thank you Barbara for your response. Like I said, I am very new to this so my questions may seem a bit naive. I am learning a lot. My team consists of pulmonologists, and infectious disease specialists who are consulting with NJH. I have not had any testing at NJH. I have only recently understood the connection my ID doctor had with NJH. There is full disclosure of all my medical conditions and medications I take for them. I was inquiring as to what exactly the Big 3 were as reading through this forum is the first I’ve heard the term. I am currently on azithromycin, and we are adding ethambutol. Additionally I have been on ARIKAYCE for 28 days, and I take omadacycline. I will ask ID why omadacycline and ARIKAYCE rather than rifampin if that is normal protocol. I have failed two other antibiotics and rifampin may be in the same class and may be thought by my providers not to be effective in my situation. It may also be that it could be contraindicated with other meds I take or that I am allergic to another antibiotic in the same class. I am allergic to several different antibiotics. These are all questions I intend to bring to my team. Again, thank you for your response. It has given me some things to consider.

Amy